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Update on my mother, she was doing well with her breathing trials for extubation but was just not strong enough and she tired out too quickly. She had a tracheostomy Monday. Now her sedation is...

Wow! MRSA! That is crazy. How did they ever know for sure the bacteria was gone??
we moved her to the new hospital as the specialize in lungs there, it may be further for us but it's a way better...

I appreciate everything and all the words of comfort. I will read these stories at night to give me strength and hope. I pray for her complete rejuvenation of lung function. She was struggling so bad...

Wow your daughter is awesome! I wonder if she ever felt guilty for leaving you once you were intubated, as that is what i am struggling with. The nurses keep assuring me she is comfortable. They went...

It is horrible. I'm praying her Christmas present will to be extubated. If only she could have tolerated the bipap machine she would not have required this intubation. Trying to stay positive is...

So did their presence help or hinder your healing?

She has been transferred it did havento be intubated. She couldn't tolerate a regular face mask and wouldn't tolerate the bipap. I'm hoping and...

Thank you all so much. It's grounded solid words like you guys that make me feel hope and remind me she's fighting for her life and she can win this battle! And that these procedures aren't the end!...

My mother has now been waiting for a bed to open up at her home hospital for over a week now. She has received ger 2nd infusion of rituxan. She had a really rough night last night due to ICU staff...

She ended up getting contrast after a leg ultrasound showed blood clots in both legs. She has one small clot in her left lung, not close to an artery thank god. She has responded well to the heparin...

Tonight marks the 48 hour mark of her infusion of rituxan. they now want to take her for a CT scan in case of blood clots, but she is allergic to the contrast so she will likely need some other form...

drz
Forgot to ask how that plasmapheresis experience was for you ? And did you have any treatment with her rituxan?? Thanks!

Thanks for the replies! Care of her rheumatologist she has been taking mycophenolate since Feb. 2017 along with predisone. This flyer has been coming for a while back in August she had been...

Thank you for the information. I'm not able to to be at the hospital as much as I would like. I'm not sure why they choose what medicine and what not. Somewhere I heard that it could start helping...

Hello, my name is Krystle and my mother is in the hospital currently for a flat up that was thought first to be pneumonia. As it turns out she was having a flare. She also has Pulmonary fibrosis. She...