I had lung nodules when I was first diagnosed, and they were a part of the diagnosis. They disappeared very quickly after my treatments of prednisone and other meds were administered. No problems...
Type: Posts; User: hellojulie
I had lung nodules when I was first diagnosed, and they were a part of the diagnosis. They disappeared very quickly after my treatments of prednisone and other meds were administered. No problems...
Lilly, it is indeed lovely to be getting to know you! I have been hoping for a correspondence with someone who is about my level of the disease, and you are such a nice person to boot! Actually I...
Hi Lilly -- be sure to get the test for flu (nose swabs)-- I never did feel like I had it, but the test showed Type A! I mean, I wasn't down with fevers except twice, briefly. I still had an...
Hello Lilly, I was diagnosed in August 2017, had the initial preds and apheresis and retuxan, started cellcept, but went into a flare anyway about a month after the last retuxan infusion - rheumy...
Will you ever see this post? This love story, this wonderful love story, is what I am living on these days. Is there a way to see the pictures? Is it my computer? All I get is a little black box...
Yes, I will do that. Thank you for the advice about being patient. I have been walking with my husband, but we just started this week. And I'm so tired when we get back (half a mile each time,...
Thank you ALL for taking the time to write. (I did a search for "depression.")
I feel very depressed with this fatigue! I am nearly always encouraged by the grandkids, who live next door, coming...
Thank you for your welcome, and your reply about fatigue. What are your medications? (or can I ask that?!?) Do you have serious vasculitis? (I'm told that Wegener's IS vasculitis, but my Wegs led...
thank you!
Thank you, a lot. Fatigue is a big problem right now. I am in bed a lot the past week and think I may be having a flare. Seeing rheum doc next week but will call before then. I always feel better...
I'm 73, married 46 years, 11 grandchildren. I was active, and in good health, up until May of 2017. I felt (I remember this distinctly) a sudden plugging of both ears, as I was driving. I thought...