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  1. Re: Curious...how many members work with this illness

    I totally agree with the fact that it is different for everyone as well as the severity of the overall symptoms. Myself I returned towork after a short stay in the hospital with a pulmonary...
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    Re: Hair Loss.....

    Thanks everyone for the feedback…….I see my Rheumatologist this afternoon and it is at the top of my list to talk about. I stopped into the health food store and picked a few different types of...
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    Hair Loss.....

    Hello everyone,

    I have done some looking around about hair loss on the site and nothing seems to be what I am experiencing. A short ok, semi short updateon the last year….

    In January, my...
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    Thank you everyone for your input and...

    Thank you everyone for your input and suggestions! I have spoken with my family doctor and rhemy specialist and they think it is a reaction to the Imuran. Recently my specialist jacked up the dose of...
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    Throat Ulcers?

    Hello everyone

    Since June I have been getting throat ulcers over and over not just 1 or 2 of them but 5 and 6 at a time making it nearly impossible to eat, drink and talk. My spouse was to the...
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    Hi mams57 I not sure I will be of much...

    Hi mams57

    I not sure I will be of much assistance as I do not live in the US, but I do work for a Disability Management company and deal with approving disability claims daily. I also sit on the...
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    Compressed Fractures??

    Hello everyone
    I was recently on holidays in Mexico for my brother wedding when I slipped and fell by the pool. I landed on my right side, turns out I even bounced twice before laying on the ground...
  8. Hi David I am totally unsure if I have an...

    Hi David

    I am totally unsure if I have an immune system left! The doctor and I went back and forth about increasing my dose in the end I agreed to do it for a short time and see if it helps with...
  9. I have been on Imuran since Nov 2011 at 150mg's...

    I have been on Imuran since Nov 2011 at 150mg's was holding steady and doctors did say that I am in remission as well. I have not had any flares or anything crazy while I have been on it, up to this...
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    I do think that Dr. Shojania has a lot of...

    I do think that Dr. Shojania has a lot of knowledge to share and I too was told he was "the" one to go to here in BC, he does get very mixed reviews and it could just honestly be the case at that...
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    Hi Lisa I actually see Dr. Shojania when I moved...

    Hi Lisa
    I actually see Dr. Shojania when I moved back to BC he was recommended.....I have had seen him three times...and to be honest with you he is one confusing man! My initial appointment was...
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    subglottic stenosis I can not say that I have...

    subglottic stenosis I can not say that I have heard that before but sounds worth looking into....I have the whole have hoarse voice thing going on all the time and I am constantly clearing my...
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    yikes...I have been off the site for a while and...

    yikes...I have been off the site for a while and just looking back through this post and see all these great comments that I never knew were there! So great to find today....happy Wednesday!

    I am...
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    when is it time to stop working?

    Well fellow Weggie's I need some assistance in an ongoing debate between my spouse and myself, over the years since my diagnosis we have tried to meet each other in the middle and hear each others...
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    I have been suffering from wheezing pretty much...

    I have been suffering from wheezing pretty much since I started to show signs of sinus infections, I also feels like someone covers my mouth and plugs my nose at the same time...cant take a breathe...
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    Thanks everyone for such a great welcome! I am...

    Thanks everyone for such a great welcome! I am pleased that I have found everyone as it seems no one in my social circle knows much about WG and they don't understand some of the limitations we get...
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    Greetings from British Columbia!

    Hello everyone,
    I am so pleased to find a site that has resources and others that are struggling with the crazy and unpredictable symptoms and random things that Wegener’s gives.

    I was...
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