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  1. Re: Your Blood Cell Size May Help Predict Poor Granulomatosis with Polyangiitis Outco

    Also I googled a bit and high rdw can also be associated with inflamation which accompanies Wegeners.
  2. Re: Your Blood Cell Size May Help Predict Poor Granulomatosis with Polyangiitis Outco

    Wow; my rdw was up around 16 to 16.5 when I was having what probably was a lung flair. I had a lot of nodules then on ct scan and they almost all went away since then after hospitalization with iv...
  3. Thread: Lung nodules

    by LisaD1
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    Re: Lung nodules

    That is very interesting that the lung nodules were the only sign it was back. When my nodules disappeared my pr3 returned to almost normal from much higher. Normal is less than 1 and my pr3 no....
  4. Thread: Lung nodules

    by LisaD1
    Replies
    12
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    42,786

    Re: Lung nodules

    I have had a lot of nodules in cat scans with the biggest being 1.3 cm. That one is now size .6 cm as of last cat scan in Dec. I had something called tree in bud pattern of nodules which at first the...
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    my advice is monthly blood tests for creatinine...

    my advice is monthly blood tests for creatinine (sp?) - part of blood chemistry.
  6. Thread: Flu Vaccine

    by LisaD1
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    7,471

    great news because I have been worried about...

    great news because I have been worried about shingles. I'll ask my rhum next week to see what he says. did you have any reaction? thanks for the discussion.
  7. Thread: Flu Vaccine

    by LisaD1
    Replies
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    7,471

    wow! how about the shingles vaccine? I didn't...

    wow! how about the shingles vaccine? I didn't get it because of the prednisone 5 mg - it's a live vaccine I was told. I wonder if 5 mg is ok for the shingles vaccine? I'll ask the rhum next week.
  8. Thread: Flu Vaccine

    by LisaD1
    Replies
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    7,471

    oh thanks I must have misunderstood - it is 4...

    oh thanks I must have misunderstood -
    it is 4 times the antigen not 4 strains of flu. Or maybe my pharmacist was sloppy in describing it......I'm over 65 and I don't think 5 mg prednisone is...
  9. Thread: Flu Vaccine

    by LisaD1
    Replies
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    7,471

    I'm on prednisone 5 mg and got the high dose flu...

    I'm on prednisone 5 mg and got the high dose flu shot sept 1 - no side effects at all for me.

    Correction: It is not "high dose" - actually it is greater coverage - 4 strains instead of three I...
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    kidney biopsy was a piece of cake for me. Just...

    kidney biopsy was a piece of cake for me. Just some normal bleeding in urine for less than 24 hours but no tiredness or anything. mine done by cat scan imaging without any meds at all. You could...
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    Also, one Rheumatologist claimed that only 5 %...

    Also, one Rheumatologist claimed that only 5 % of PR3 positive ppl (without C Anca positive) had wegs while another one said PR3 and Canca go together (somehow which I did not exactly...
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    were you diagnosed by lung biopsy or clinical...

    were you diagnosed by lung biopsy or clinical manifestations? Thanks!
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    I have read on here but forget where that for...

    I have read on here but forget where that for SOME people the PR3 elevates during flares and that a positive C Anca can go back to normal during remissions....It is probably not a reliable indicator...
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    all true I had Cbc, urine, chem, sed and esr...

    all true I had Cbc, urine, chem, sed and esr already and now the anca panel just for curiosity's sake if nothing else
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    interesting because I usually only have pr3...

    interesting because I usually only have pr3 positive too. Had the anca/pr3 test today - we'll see if it reveals anything. CBC etc. good except for small white cell elevation due to prednisone.
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    Thanks for the response - following up with...

    Thanks for the response - following up with another Anca panel to be on safe side (in case that indicates anything which may or may not happen).
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    Flair but normal SED/CRP?

    Has anyone ever had a flair when their SED rate and C Reactive Protein were normal range? Thanks in advance. Lisa
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    Gilders - thank God! make sure you drink lots...

    Gilders - thank God! make sure you drink lots of water in the days before the blood work so not dehydrated! Hoping the 18 % stays the same or gets even better.
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    Wow thanks Alysia.

    Wow thanks Alysia.
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    I am only on 5 mg prednisone! nothing else. I...

    I am only on 5 mg prednisone! nothing else. I did have a high dose prednisone event in the hospital for asthma a few months ago but relatively quickly tapered back to 5 mg pred. and I am feeling...
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    oops sorry I confused ulcerative colitis and...

    oops sorry I confused ulcerative colitis and chron's disease. I meant that PR3 is not usually positive in Chron's disease
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    i only have two ideas about this: 1. there is a...

    i only have two ideas about this: 1. there is a test called PR3 that is positive in Chron's disease I've heard so that would be a test you could ask for (it is also positive in Wegs). 2. I have...
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    Just a data point - may differ with others - I...

    Just a data point - may differ with others - I have no idea how this works. In my case, my kidney function improved over a year and a half time frame from 18 GFR to 26 GFR and knock on wood may...
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    I'm going to pray they "trust" my tests if I end...

    I'm going to pray they "trust" my tests if I end up needing them in person but I am definitely going to go for the consult approach first after I get the bronchoscope since that seems to be...
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    here is a data point for Sed/CRP difference just...

    here is a data point for Sed/CRP difference just as I was getting a massive asthma attack: SED- 30 (top end of normal at my lab) CRP 2.6 (normal less than .8). This shows that the SED rate had not...
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