Search:

Type: Posts; User: Alysia

Page 1 of 20 1 2 3 4

Search: Search took 0.05 seconds.

  1. Re: shankxonline - My path to identify GPA and overcome it

    Sherry, for me it took 2 rounds of rtx (6 months between) and 9 months since I started it, in order to see a real difference.
  2. Thread: Your Thoughts

    by Alysia
    Replies
    8
    Views
    76

    Re: Your Thoughts

    Hi Masha,

    On the contrary - for me the drop from 100 or 120mg on rtx day to 5mg the day after is too much and in the last years (I am on rtx every 6 months since 2013) I even took 20mg the day...
  3. Replies
    961
    Views
    94,017

    Re: pberggren memorial thread

    Thank you so much my friends, for your caring and kind words. You warm my heart. I love you. Thank you for being here.

    I share here things which I don't share on facebook. I don't want to make...
  4. Thread: Transplant

    by Alysia
    Replies
    258
    Views
    27,227

    Re: Transplant

    Pete, it is very sweet of you to show yourself in a better way then you really are to your father. And I am also sure that he would give you the whole world if he only could. This is what parents are...
  5. Replies
    961
    Views
    94,017

    Re: pberggren memorial thread

    Thank you from the bottom of my heart, Anne and Michelle for being with me and with my sweetie, back then and ever since. Your friendship and support are priceless and I love you.

    Yesterday, Oct...
  6. Replies
    961
    Views
    94,017

    Re: pberggren memorial thread

    5 years today since my Batman flied high.... I have so much to say but not sure it's the place...

    RIP dr. Phil and come to help us from time to time. We still need you. I do. And I love you. To...
  7. Re: Rituxin - C19 and C20 and length of B cell suppresion

    Sorry you had to go through this tough time, sister. Thank God you are doing better.

    When my pr3 is up, I know it means that wg is active. It can be up even when C-anca is negative. And I had a...
  8. Replies
    99
    Views
    11,593

    Re: Glad to be diagnosed

    so nice to see you here, Geoff, I've missed you. Thank God you are doing well. I am also on the pred almost 11 years, celebrating my wg anniversary in 10 days from today.
    How much rtx do you get...
  9. Thread: Transplant

    by Alysia
    Replies
    258
    Views
    27,227

    Re: Transplant

    I think so, too. Keeping you in my prayers.

    Happy New Hebrew Year (starting tonight, Israel time), may it be a year of good health and good news !
  10. Replies
    14
    Views
    394

    Re: Hello from Shawny

    Welcome to the family, Shawny.

    Sorry about your disease and about your divorce (you wrote about on another thread). I hope you can find a way to reduce the stress and get enough support. We are...
  11. Replies
    15
    Views
    314

    Re: Methotrexate without Prednisone

    I know weggies who are on immune suppresed meds without pred, and to be honest, I am jealous at them.

    I am on the pred since 2008 and will never be able to quit it. Started on 60mg because of...
  12. Thread: Transplant

    by Alysia
    Replies
    258
    Views
    27,227

    Re: Transplant

    Thanks for the update. I googled tacrolimus and found out its an immune suppresed med to help with transplants.

    Praying it can give an explanation and that the change will improve the kidneys'...
  13. Replies
    17
    Views
    514

    Re: 1000mg or 2000mg rtx ?

    Thanks for sharing. I guess you will get rtx 500mg 4 times ?

    Many times the labs don't reflect how much the wg is active. Only in 2 flares I had a dramatic labs' results. Wg can also be...
  14. Replies
    17
    Views
    514

    Re: 1000mg or 2000mg rtx ?

    I used to get the symptoms coming back also about a month before the next infusion. That was when I was on 2000mg. Now on the 1000mg the symptoms have started much earlier. I had only 2 and half...
  15. Thread: Transplant

    by Alysia
    Replies
    258
    Views
    27,227

    Re: Transplant

    So sorry the numbers are down again. Is there any explanation the docs give to the fluctuations ?
    Praying for you always, Pete, please update us how are you doing.
  16. Re: shankxonline - My path to identify GPA and overcome it

    Welcome to the forum. Please remember that being on 40mg pred for 2 months already - should change the symptoms and the tests' results. While trying to figure out your diagnosis the dr needs to check...
  17. Replies
    3
    Views
    99

    Re: PR3 Antibodies Elevated

    In my case elavated PR3 is deffinitely an indicator for a flare coming. I wouldn't wait too long. Ask for treatment. If you are on rtx it takes time to start working anyway.
  18. Replies
    17
    Views
    514

    Re: 1000mg or 2000mg rtx ?

    Thank you for your kindness. Maybe 1000mg is just not enough for you, like it seems to be in my case ?
  19. Replies
    17
    Views
    514

    Re: 1000mg or 2000mg rtx ?

    Did you try Ivig ?
  20. Replies
    17
    Views
    514

    Re: 1000mg or 2000mg rtx ?

    Masha, please check this link

    https://kidshealth.org/en/parents/test-immunoglobulins.html

    Immunoglobulins reflect the ability of the immune system to fight infections. IgG is the one my dr....
  21. Replies
    17
    Views
    514

    Re: 1000mg or 2000mg rtx ?

    Thank you so much for your comments, my friends.

    But - wait a minute - I was misunderstood: rtx is still effective for me ! I never said that it's efficiency for me is less. No way. Actually the...
  22. Replies
    17
    Views
    514

    1000mg or 2000mg rtx ?

    Hi,
    Since 2013 I got 2000mg rtx at every round (2 weeks between) every 6 months. We once tried 1000mg which didn't hold and 2 months later I got the second 1000mg.

    The last round my wg dr. and...
  23. Replies
    131
    Views
    12,484

    Re: Happy Birthdays Thread

    Happy Birthday Pete and gilders. Do you both have birthdays on the same day ?

    Pete, I hope you and your wife are doing better and that you have a great pain free and flare free day :thumbsup:
    ...
  24. Replies
    131
    Views
    12,484

    Re: Happy Birthdays Thread

    annekat, do I remember correctly and you had a blueberry avatar here long ago ?
  25. Replies
    131
    Views
    12,484

    Re: Happy Birthdays Thread

    Happy Birthday annekat and thanks for being with us all the way, sharing your wisdom and experience, being such a sweet and kind friend. We love you :wub:

    May you have a wonderful day, a long...
Results 1 to 25 of 500
Page 1 of 20 1 2 3 4