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  1. Thread: new

    by annekat
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    Re: new

    Welcome to the forum, HSD. I can't speak specifically to MS, but I know it is not uncommon for a person to have more than one autoimmune condition. I hope if someone here also has MS that they will...
  2. Re: shankxonline - My path to identify GPA and overcome it

    Hi, Sherry,
    Actually my symptoms are really much better now, since I started treatment in 2011. That doesn't mean it will take you that long, since you had a fairly quick diagnosis and I was living...
  3. Thread: Richmond va

    by annekat
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    Re: Richmond va

    Hi, Bradhunter,

    At this point I don't even feel the MTX since I've been taking it about 7 years. But at the beginning there was a slight feeling of nausea, though not enough to actually throw up,...
  4. Thread: Richmond va

    by annekat
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    Re: Richmond va

    Someone I know in VA and one in MD are going to Dr. Seo at Johns Hopkins in Baltimore for WG/GPA. He is very highly thought of by them and by the Vasculitis community overall. If you can't get in to...
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    Re: In process of diagnosis

    Welcome, Mindy, and it sounds like you are on the right track. Pete is an excellent source of information, and you are lucky to be able to go to the Cleveland Clinic, even if it is a 4 hour drive....
  6. Re: shankxonline - My path to identify GPA and overcome it

    Hi, Lea, and welcome to the forum. I have been coming here since March 2011 right before I was diagnosed. My saddle nose happened suddenly around the same time that I was in the hospital overnight...
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    Re: Methotrexate without Prednisone

    Welcome to the forum, Chris! When I was dxed back in 2011 I had about the same symptoms as your daughter. A perforated septum had quickly developed into a saddle nose, I had heavy involvement in...
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    Re: Newly diagnosed and Divorcing

    Sorry for all the stress. Meditation is a great idea. I've been telling myself I need to make time for it, and your words may influence me to just do it, and not to forget to. I have stress, too, but...
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    Re: pberggren memorial thread

    Alysia, what a busy day you had! I have few symptoms of WG anymore, but still get the crushing fatigue every day and have to neglect some of the things on my list. Your energy is amazing, and I know...
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    Re: pberggren memorial thread

    I still remember the shock of that day. And you handled it with such composure. This is a sad anniversary for you, Phil's family, and all of us. It's a blessing that you were able to be there for him...
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    Re: Glad to be diagnosed

    Great to see you on here again, Geoff! And to hear that you are doing so well. Especially interested in your adrenal glands! Though not sure why you can't get off pred if they are working. I recently...
  12. Thread: Transplant

    by annekat
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    Re: Transplant

    We'll take that as good news, I think, Pete!

    Sent from my MotoE2(4G-LTE) using Tapatalk
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    Re: Hello from Shawny

    A word about prednisone: People's reactions to it seem to vary widely. Some can't tolerate it, period. Others actually enjoy it, as it gives them more energy for various household projects, etc., and...
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    Re: Hello from Shawny

    Hi, Shawny,
    I just jumped over here from the other thread you started about the situation with your marriage. That is a subject in itself, and I can only say that it's unfortunate that you won't get...
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    Re: Newly diagnosed and Divorcing

    Shawny, you have my sympathy. I see you have started another thread, so I am going to go look there. And welcome to the forum, you have come to the right place!

    Anne

    Sent from my MotoE2(4G-LTE)...
  16. Thread: Transplant

    by annekat
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    Re: Transplant

    Darn it, Pete. I guess we shouldn't get too excited when you have a good trend.
    But you are the important one here, and I'm glad you aren't worrying much yet. Perhaps the tests aren't perfectly...
  17. Thread: Lena's story

    by annekat
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    Re: Lena's story

    vdub, that is interesting. I have arthritis at the base of one thumb, just below the wrist, and can see it starting on the other one. There is what I would call a knot on each. I know this is related...
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    Re: PR3 Antibodies Elevated

    I guess if it was me and I'd been totally off meds for only two months, I'd be a little concerned about a possible flare up. But the things you mentioned, ears and lungs, I would think would be...
  19. Thread: Lena's story

    by annekat
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    Re: Lena's story

    Kirk, somehow I'd thought you had mentioned NAC before. Guess not. I have a lot less mucus since my sinuses have eroded and nothing can collect there anymore. But I still have some, and the problem...
  20. Thread: Lena's story

    by annekat
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    Re: Lena's story

    Hi, Lena,
    It's been bugging me for a few days that I didn't manage to reply to your post. Welcome to the forum! Of course, you have already received a wealth of knowledge and feedback.

    First of...
  21. Re: shankxonline - My path to identify GPA and overcome it

    Yes, 40mg is kind of a lot of pred to be on for two months. Everyone handles it differently, some can't tolerate it and some actually like it! Or the improvement it makes for them, like when I was...
  22. Re: shankxonline - My path to identify GPA and overcome it

    Now looking at your original post, where there was some kidney stuff going on, and here, where you say kidney function was found normal. If there is any doubt about WG being in your kidneys, a biopsy...
  23. Re: shankxonline - My path to identify GPA and overcome it

    The first thing that jumped out at me was regarding your desire to discontinue prednisone when you start one of the standard immunosuppressant meds, that is IF you are found to have GPA or a similar,...
  24. Thread: Transplant

    by annekat
    Replies
    258
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    27,227

    Re: Transplant

    It's great to hear you are firmly on the upswing, Pete! After all this time...you have been so patient! And your family, including your dad, of course, must be quite happy about this!

    Sent from my...
  25. Re: Newly diagnosed - ANCA positive, Joints and muscle pains, eye pressure

    Welcome to the forum. You are lucky to live in the SF area. There may be several good GPA doctors in the SF area, but the one I've heard recommended most often is Sharon Chung at UCSF medical center....
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