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    The best of birthdays ever!! Sent from my...

    The best of birthdays ever!!


    Sent from my iPhone using Tapatalk
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    Dear Anne: happy happy birthday!! Health and...

    Dear Anne: happy happy birthday!! Health and happiness always!! Sorry for belated wishes but I had problems with tapatalk for a month.


    Sent from my iPhone using Tapatalk
  3. Thread: Finally...

    by jvilner
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    Woo-hoo! Hope it lasts forever!

    Woo-hoo! Hope it lasts forever!
  4. I lived in union county for 25 years. I remember...

    I lived in union county for 25 years. I remember when I took my mom to the hospital when she had cancer and the dr asked me if she ever lived out of the country as we lived in 'cancer alley' I.e....
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    Thanks Jaha for your reply and support!!

    Thanks Jaha for your reply and support!!
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    I'm going for a dilation of the esophagus next...

    I'm going for a dilation of the esophagus next month. What can I expect afterwards. Have problems swallowing and can't take pills. Is this WG related?
  7. Thread: Negative ANCA

    by jvilner
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    Question as I am very confused now. Been told...

    Question as I am very confused now. Been told that I need dilation on esophagus. Barium swallow shows web/ring. I've had swallowing problems for years. No airway problems. Was dxed with WG only...
  8. Thread: Negative ANCA

    by jvilner
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    Hi brilliantlight, welcome! I also am considered...

    Hi brilliantlight, welcome! I also am considered having limited wegs and have a neg anca. My ears are my problem. What I understand is that I am being treated to slow down the potential progress...
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    I also get the yearly infusion. A day later I...

    I also get the yearly infusion. A day later I feel like I have the flu for 2 days and then some tolerable lingering symptoms for a week afterwards. But it's better than suffering from GERD!
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    Meredith-was that a problem due to breathing or...

    Meredith-was that a problem due to breathing or swallowing?
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    I experienced swallowing problems that have...

    I experienced swallowing problems that have recently been diagnosed as an esophageal web. Any one has knowledge of a connection to WG?
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    Bear in mind that the first year after diagnosis...

    Bear in mind that the first year after diagnosis is tough. A lot to learn and get used to. Good luck to you!
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    My avatar is a pic of myself on a trip to Lake...

    My avatar is a pic of myself on a trip to Lake Como in Italy before all my Wegener problems started. I love traveling to Italy. Plus I felt so serene and peaceful then. Guess it was the calm before...
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    🎂happy birthday Andrew!!🎂

    🎂happy birthday Andrew!!🎂
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    There is a bad stomach going around here. If one...

    There is a bad stomach going around here. If one doesn't have that then they have the terrible cold. Feel good soon!
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    I hope I succeeded in changing my avatar now in...

    I hope I succeeded in changing my avatar now in memory of Phil.
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    My heart goes out to you!! I can only imagine how...

    My heart goes out to you!! I can only imagine how you feel. Stay strong and have a safe trip home.
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    Alysia-my sincere condolences to you and Phil's...

    Alysia-my sincere condolences to you and Phil's family. The news is very difficult to digest. Phil had a wealth weggie knowledge that helped me when I needed it and he was a warrior to the end!!...
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    Praying while keeping my fingers crossed!!

    Praying while keeping my fingers crossed!!
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    I am in agreement with everyone. Well put!! Don't...

    I am in agreement with everyone. Well put!! Don't do it Andrew.
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    Wishing you both only the very best of health and...

    Wishing you both only the very best of health and happiness. Safe travels Alysia and your presence will be the best medicine for Phil.
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    Alysia stay strong! Phil feels your love from...

    Alysia stay strong! Phil feels your love from across the other side of the world. Sending prayers to Phil and you!!
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    Hoping Phil gets better and that you take care of...

    Hoping Phil gets better and that you take care of yourself as well!!
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    I did the infusion last May. A day after I felt...

    I did the infusion last May. A day after I felt crummy like the flu for 48 hrs. Had some aches and pains a month afterwards but all ok now.
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    All my first cousins (11) have autoimmune...

    All my first cousins (11) have autoimmune problems. Mainly thyroid issues. My mom had issues and my dad had myastenia gravis. Now I have WG and my sister lupus. We got the whoppers!!
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