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  1. Thread: Sweats

    by tac
    Replies
    22
    Views
    4,592

    Re: Sweats

    I am so glad this post is here! YES, I sweat, sometimes worse then others, I feel pred. helps with this. It is when I am amoldering or flaring, which seems like all the time lately!
  2. Thread: Igg

    by tac
    Replies
    0
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    9

    Igg

    Hi Everyone,
    A while back there was a thread regarding low IGG's and what to do about it. I wanted to share my new info. on this. I went to a immunologist/allergist because I have low IGG. He...
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    Re: Imuran Side Effects

    Hi There,
    This is very good info. I just finished my last of 4 RTX infusions today, still feeling really bad, went back up to 20 mg of pred from 12.5. Excessive sweating, brain fog, confusion,...
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    Re: 1000mg or 2000mg rtx ?

    Thank you. My doctor told me I need to manage my symptoms better (which is probably true but not the answer) She says to wait it out until next week when I get the RTX and prednisone IV and see what...
  5. Re: Newly diagnosed - ANCA positive, Joints and muscle pains, eye pressure

    Welcome! I had similar symptoms especially with the eye pressure and bottom of feet pain where I could not even walk for a while. Also had lung infiltration's and shortness of breathe, extreme brain...
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    Re: 1000mg or 2000mg rtx ?

    I am scheduled for my 2nd Rtx infusion. It has been almost 6 months. I am really starting to not feel well, my eyes hurt, tired, joint pain, headaches, etc. It takes a while for RTX to kick in for...
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    Re: new member with question regarding remission

    Thank you for the advice.:)
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    873

    Re: new member with question regarding remission

    Thank you, My third Doctor has a education from John Hopkins, she is a Dr in a hospital here and is working closely with my pulmanologist (the man who found the WG, he is the one who ran the c anca) ...
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    Re: new member with question regarding remission

    Thank you.
  10. Replies
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    Re: new member with question regarding remission

    My Sed rate is lower at about 30-35. It was at 55-60. My c-anca was at 1180, now at 160, so it appears that my numbers are better, my new Doctor is calling it a partial remission, however this past...
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    new member with question regarding remission

    Hi,
    I was diagnosed with GPA in Feb 2019, after about 1 year of misdiagnoses. ( I had crust in nose, lung infiltrates, shortness of breath, exhaustion, joint pain, stomach problems, major brain...
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