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I am looking for advice from you wise folks. My wegeners hit my ears mainly and caused hearing and minor lung damage before diagnosis. In last almost 2 years I have been on high dose of pred and...

I'm sorry you are feeling so bad. MTX also made me horribly sick. After pills and injections for about 16 months my Dr finally switched me to Rituxin in October and it is so much better. I was...

I have had almost the exact same experience with Dr. Koening as vdub. Koening is terrific and thorough and will find what out what is going on with you. Best of luck to you. Getting a true...

Thank you both.

I was able to see my ear specialist who performed surgery on my left ear before gpa diagnosis when it looked infectious. He put another small tube in right ear and will monitor...

I am hoping someone here will recognize what could be going on with me. I was diagnosed in late March. My main damage was to my hearing..specifically my left ear. Long story short..
I am...

I just returned from a quick trip to see Dr Koening at the univ of Utah. I really want to encourage other newly diagnosed to seek that expert opinion. Most especially if your local Dr is not...

Thank you everyone for the feedback. I am in the process of getting referral to specialist Dr Koening in Utah who is nearest to me. I really don't think I have bronchitis...it feels like wegeners...

Hi all.. I was diagnosed on March 27th after being sick for months. So far only upper respiratory but have permanent severe hearing loss in left ear. I live in Denver area so no specialist but I...