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  1. Thread: Transplant

    by Jaha
    Replies
    204
    Views
    19,165

    Re: Transplant

    I am wishing you all the best for better results. Please take care of yourself!
  2. Thread: Transplant

    by Jaha
    Replies
    204
    Views
    19,165

    Re: Transplant

    Pete,
    I am so happy for you and pray for continued improvements everyday. You are a true Warrior! You have been quite brave and patient with all that you have been through. I am wishing you all the...
  3. Thread: Nine years

    by Jaha
    Replies
    6
    Views
    185

    Nine years

    ​Nine years ago today, (4/24/2010), I had a left lung resection, they took 38 grams, for a better biopsy, prior to that I had an unsuccessful needle biospy. I had been sick for a long while, with one...
  4. Thread: Transplant

    by Jaha
    Replies
    204
    Views
    19,165

    Re: Transplant

    Thank you for sharing your experience, this will be beneficial to others. It sounds like you and your Dad, had a lot on you and made it on thru to the rest and healing process. Please take good care...
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    Re: Celebrate how far we have come!

    Drz, I am so glad you came out of your flair still kicking. Like you, I have to sometimes manage my own flairs, not advisable without Dr agreement.I also am at 9 yrs out and I really need to get back...
  6. Thread: Transplant

    by Jaha
    Replies
    204
    Views
    19,165

    Re: Transplant

    Pete,
    I am so happy that you are doing okay. I know that it has been a long road to get here and you did it. I pray that you and your Dad, get home soon and recover quickly. Please take good care of...
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    4
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    167

    Happy New Year to all, just a bit late!!💜

    I'm wishing you all better health for 2019!!
  8. Thread: Eight years later

    by Jaha
    Replies
    16
    Views
    1,389

    Re: Eight years later

    Time for an update, oh boy here we go! Well I hope most of you are doing better these days. I notice that there is not a lot of activity on here from some of us oldies. I hope this is a good sign for...
  9. Thread: 7 Years In

    by Jaha
    Replies
    3
    Views
    461

    Re: 7 Years In

    I am wishing you all the best with your infusion. I'm glad that you are doing pretty well Gunny! It will be good to hear from you again. Stay strong!
  10. Replies
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    Re: 13yr daughter has Wegeners

    I am so sorry that your young daughter has this very awful unpredictable disease. Does she see a Wegeners specialist? It does get better with the proper treatments and really good doctors to guide...
  11. Replies
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    9,455

    Re: Happy Birthdays Thread

    Happy Birthday �� Andrew! I hope you have a wonderful!
    Thanks for all you do!!
  12. Replies
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    89,315

    Re: pberggren memorial thread

    I am sending prayers for getting peace and understanding, more and more everyday. You severely an amazing,kind and loving woman. Phil was a Warrior and you gave him the greatest gift of all love....
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    Re: Prednisone Reduction, Flonase

    I'm wishing you all the best with tapering. I haven't been very successful, as I have to go up and down. I was at 6mgs a year ago and am now back up to 15mgs.
    Taper very slowly, so that you don't...
  14. Thread: Strict Dieting

    by Jaha
    Replies
    46
    Views
    3,541

    Re: Strict Dieting

    A 30lb weight loss is great. It really gets harder as we have less to lose.
    I am sure that it is even harder when you combine the DM, with weight loss. Keep up the good work and give yourself a pat...
  15. Thread: New Memeber

    by Jaha
    Replies
    6
    Views
    524

    Re: New Memeber

    Sandy,
    I'm sorry you are going through the nerve pain. It sounds like you have been through a lot already. I hope you get some resolution to your nerve pain. That's the worst kind of pain.
    I have...
  16. Replies
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    Re: Extremely Frustrating Flare.

    I'm sorry that you are having the pain and do think you are probably flaring. I really hope that gets resolved for you with your doctors help.
    My PCP, recommended CBS oil for me and I am just now...
  17. Thread: Eight years later

    by Jaha
    Replies
    16
    Views
    1,389

    Re: Eight years later

    Thank you Rose, for sharing your experience with me. It is sometimes so hard to convince a Rheumy that maybe it is a flare. I hope you don't still have the intestinal problems and are doing well now....
  18. Thread: Eight years later

    by Jaha
    Replies
    16
    Views
    1,389

    Re: Eight years later

    Thank you all for your kind words. John I will miss you by 1 day. I am wishing you all the best with your infusion!
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    Re: Blisters on my index finger!!!

    I do get those on my arms, my Rheumy says it is from preds, I say it is Wegs related. I am wishing you all the best for finding an answer to what it is. Take care
  20. Thread: Eight years later

    by Jaha
    Replies
    16
    Views
    1,389

    Re: Eight years later

    I haven't posted anything for a while, so here we go with an update.
    I am due to have an another RTX infusion 10/24 and boy could I use it. I'm having too many multiple problems and really would...
  21. Thread: Strict Dieting

    by Jaha
    Replies
    46
    Views
    3,541

    Re: Strict Dieting

    John,
    Congratulations on your weight loss! It is really hard to do, while in tx for DM and Weg's. Have you tried to eat more of the high protein, low carbs type diet? We can sometimes throw our...
  22. Replies
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    9,455

    Re: Happy Birthdays Thread

    Anne,
    Happy Birthday, I wish all the best to you today and in the coming years!
  23. Replies
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    1,895

    Re: Another Warrior has lost his Battle!

    May she rest in peace!
  24. Replies
    13
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    1,504

    Re: Pred Taper Completed

    Pete,
    Congratulations, very good news. Keep up the good health!:hug3:
  25. Replies
    15
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    1,546

    Re: A Tiredness Upon Waking And At Night:

    Exhaustion is a big part of Wegs. There are nights that I can't go to sleep, even when taking my medication to sleep. My Doc always questions me about how I'm sleeping. I wish you all the best with...
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