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Hi Teri, I am doing really well now. Thanks for asking. How is your daughter this week? My heart goes out to you...hospitals are brutal and so hard on the family. I am still on Prednisone. I got...

I was just dx'd in August 16 and am about to have my the last infusion of my 2nd round since the hospital on Thursday. I have had several issues with upper respiratory drainage and coughing since...

I had multiple ear infections and antibiotics (adult onset) and shortly before my hospital and dx, fluid on the ears. I have resulting mild/moderate hearing loss and irritating tinnitus. I am...

Thank you Marta! Based on your profile pic...pretty sure we could be bff's :) Skiing is my favorite outdoor activity. I haven't put up my skis yet, so to speak...but I may be forced to give it up....

Yes, very helpful...thank you. When the office called with the results, I was told "the test came back positive, which tells us that we are are the right track with the treatment" I asked why the...

Wow, I've read several posts of people diagnosed that were considered health conscious...same for me. A year or so prior to my horrible diagnosis experience, I ate very little sugar, very little...

This is my third series of Rituxin. I have 1g, in two infusions two weeks apart every 4 months. I suspect I may have to stay on the Prednisone due to adrenal fatigue also. My cortisol was a little...

Thanks for the reply Pete. I feel tired, but have attributed it to getting used to the lower levels of Prednisone. I've also had some extra stress since January due to some other family health...

Thank you and the others that have replied. It's nice to talk to otherz that have an idea of what I've been through. I came home from the hospital on Sept 1 on 80mg... tapering down to 2.5 this...

Dx'd in August 2016 with GPA - Prior to this diagnosis, I was a healthy, active, health conscious 54 year old. I had been dx'd with seronegative RA 10 years ago that was managed easily with minimal...

Hi Teri,
So sorry to read that your daughter is dealing with this. Yes, both of my lungs filled with blood and I was intubated twice during my 31 day hospital stay. I was dx'd in Aug 16. I also...

Newly diagnosed this summer. Wegener's tried to kill me, but thankfully wasn't successful. I just had my 2nd ANCA test post-hospital. The C-ANCA and P-ANCA were negative for the first time,...