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Type: Posts; User: drz

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    Re: COVID 19 and Vasculitis Webinar

    How many watched the webinar? Lot of info presented but consensus seemed to be we don't know enough yet about most of the issues. Use common sense to stay safe and stay sane.
    I Liked Spechs...
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    Re: COVID 19 and Vaculitis

    I just signed up for webinar on
    What We Know and Don't Know: Vasculitis and COVID-19
    Description Join our vasculitis experts in a discussion about vasculitis, COVID-19 and the...
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    Re: COVID 19 and vasculitis study

    https://www.vasculitisfoundation.org/coronavirus-covid-19/vasculitiscovid19/
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    Correct name for virus differs from illness it causes

    Officially named SARS-CoV-2, the novel coronavirus first identified by scientists in December 2019 has a different name than the illness it causes, which is known as COVID-19.
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    Re: Coronavirus and GPA

    I read a recent study about the effectiveness of various types of heme made masks. Most scored very poorly for protecting the wearer but any would help reduce the spread by protecting others. The ...
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    Re: Coronavirus and GPA

    Call in and discuss your concerns and they will most likely help you figure you the best way to help you get the service you need safely. Locally they have set up special hours and services, a drive...
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    Re: Coronavirus and GPA

    We are transitioning here in Minnesota. Our governor opened up some outdoor recreation like golf courses and parks but most things are still closed down. Our governor just announced a plan that two...
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    Re: New to forum, not new to GPA

    it is impressive a bit amazing that you had such a long run between initial problems and recent ones. You mention some kidney symptoms. Do you have any of the typical damage from GPA? Any current...
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    Re: Coronavirus and GPA

    Like many others here I have same issues. So far there are no virus cases in our local hospital and only couple confirmed in our area. So my local doctor thought the risk of coming in for my monthly...
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    Info on flu this past week

    USA - Key updates for Week 13, ending March 28, 2020
    Nationally, the percent of laboratory specimens testing positive for influenza at clinical laboratories continued to decrease and is now low. ...
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    Re: Coronavirus and GPA

    I read that Taiwan did well in handling the pandemic because they were excluded from WHO and didn't get their false info down playing the seriousness of the Covid-19.
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    Re: Coronavirus and GPA

    I just read that both countries are experiencing a rebound in number of cases from people returning or visiting their countries again. Still low numbers but a disturbing trend since there are big...
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    Info about the virus I found interesting and helpful

    The following is forwarded from Irene Ken a physician whose daughter is an Asst. Prof of infectious diseases at John Hopkins University.

    Informative medical science facts...
    In our community...
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    Re: COVID 19 and Wegener's - musings

    Is this drug ever used in treatment of GPA? tocilizumab

    massive steroids are usually used but are there any other similarities in how Covid 19 and GPA flares are usually treated?
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    Re: Coronavirus and GPA

    How do they get the items from the store into your car cause the drive thru windows are rather small? Does some one bring them out and give them to you?
    I learned our Walgreens says they will only...
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    Re: Coronavirus and GPA

    I went in two days early for my Pentamadine treatment for same reason. We had no confirmed cases in town yet or suspected cases being treated in the hospital so this was as safe a time as it is...
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    Re: Coronavirus and GPA

    I read that younger and older people are most blase about physical distance for safety. For me the memories of fighting for air when I was drowning in my own blood ten years ago for weeks in ICU is...
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    Re: Coronavirus and GPA

    I tried the desensitization protocol a few years back and I was terminated from it on the second day as my throat started to tighten up. Other wise as I recall it was a 20 day procedure so I went on...
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    Re: Coronavirus and GPA

    Our state has canceled all non-essential medical services so I will find out next week if my monthly Pentamadine treatment is considered essential. Last week my internist thought I should take it as...
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    Re: Coronavirus and GPA Great News just posted.

    Based on results of clinical trials conducted with affected patients in both Wuhan and Shenzhen by Chinese medical authorities, Japanese-made flu drug favipiravir (also known as Avigan) has been...
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    Re: Coronavirus and GPA

    Lots of discussion going on as every place and people try to deal with steps to contain the virus. Changes and rules happen very quickly which just contributes to the chaos and stress. But for the...
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    Re: Duke visit and Richmond Virginia

    Sinus damage from GPA is very common. GPA can attack the eyes and scleritis is common along with inflammation of eye lids but more serious attacks can also cause loss of vision so prompt assessment...
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    Re: Thx 4 Birthday wish

    Hope your next birthday is more joyous occasion.
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    Re: Tinnitus, how can I cope with this symptom?

    I lost my hearing and balance in my right ear from GPA. I had poor hearing already in my left ear from several surgeries necessitated by years of infections and only had my inner ear left which gave...
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    Re: Coronavirus and GPA

    It is amazing how fast things can change as people react to the Covid-19 pandemic. Shortly after my last post our State canceled all the high school basketball tournament games, all nursing homes...
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