Search:

Type: Posts; User: katwoman

Page 1 of 6 1 2 3 4

Search: Search took 0.01 seconds.

  1. Replies
    38
    Views
    12,132

    Hi Malissa, Has your dad been able to find...

    Hi Malissa,
    Has your dad been able to find suitable care. When I first became ill with WG I was visiting my brother in Wollongong, the doctor on call at the hospital in Wollongong base hospital that...
  2. Replies
    24
    Views
    5,730

    Thank you for your responses, my next Cyclo...

    Thank you for your responses, my next Cyclo treatment is next week which I am not looking forward to it - I also have been experiencing lower back pain for the last month, been going to physio but...
  3. Replies
    24
    Views
    5,730

    Clyclo & Rituxan in Australia

    Hello strangers, nice to be back with you all! I have had one hell of a ride with WG since last September and have a question after my long winded explanation :-)

    Had been in remission and decided...
  4. Replies
    15
    Views
    2,971

    I had my flare 12 months ago with joint pain,...

    I had my flare 12 months ago with joint pain, tiredness and sinus problems, since methotrexate/pred & bactrim all the other symptoms subsided except the sinus areas and currently I am once again...
  5. Replies
    15
    Views
    2,971

    Oh yes Jack, I use the saline nasal wash a number...

    Oh yes Jack, I use the saline nasal wash a number of times a day, along with nasal irrigation douche and as steamer and plus lubricates etc - unfortunately nothing seems to hold back the bloody...
  6. Replies
    15
    Views
    2,971

    Thank you everyone for your comments, I know its...

    Thank you everyone for your comments, I know its not something to be taken likely but the pain I have even to touch my nose and then the blood and crusting is getting to me! I always sound like I am...
  7. Replies
    15
    Views
    2,971

    Saddle Nose - Surgery in Australia

    Hi everyone,
    Long time since I've written, been busy with life and WG - after 12 months on Methotrexate and Bactrim my Rheumy has decided its not controlling my limited WG....I could have told him...
  8. Replies
    144
    Views
    23,012

    Hi Dee, sorry the nasal spray I was referring to...

    Hi Dee, sorry the nasal spray I was referring to is Fess non-medicated isotonic saline solution, so basically salty water.....I don't use the steroid based nasal sprays. Hope your appointment goes...
  9. Replies
    25
    Views
    6,720

    Thanks Lightwarrior, I will mention (nicely) how...

    Thanks Lightwarrior, I will mention (nicely) how difficult it is to get past his receptionist, maybe he needs to communicate with his staff as well, i'm sure they don't know my situation.
    ...
  10. Replies
    144
    Views
    23,012

    Thanks Sangye, will steer clear of them, just...

    Thanks Sangye, will steer clear of them, just wish I had more energy, I'm 36 but feel 63 sometimes!
  11. Replies
    25
    Views
    6,720

    Doctors Receptionists....any tips?

    So how do you deal with receptionist that rules the surgery?

    A couple of months back I developed a cough that was so bad I was coughing until I vomited and couldn't speak because it aggravated the...
  12. Replies
    144
    Views
    23,012

    Hey Sangye, yes to smell would be a wonderful...

    Hey Sangye, yes to smell would be a wonderful thing, sometimes I feel like getting a couple of drinking straws and sticking up my nose...lol

    I am doing heaps better joint wise, but energy levels...
  13. Thread: News of Jack

    by katwoman
    Replies
    1,030
    Views
    159,224

    Please give Jack my regards, wishing him a speedy...

    Please give Jack my regards, wishing him a speedy recovery!!
    Kat
  14. Yes Elephant, it would be wonderful to get off...

    Yes Elephant, it would be wonderful to get off the Pred...it's not a friend I would like to keep in contact with ;-) hehehe. Yes i'm on 25mg of Methotrexate once a week, not a big fan of that one...
  15. Hi Elephant, ENT wants me back on 20mg (was on...

    Hi Elephant, ENT wants me back on 20mg (was on 15mg hoping to reduce to 10mg). My sinuses are really taking a battering at the moment, it is so tender up there and like you I miss my sense of taste...
  16. Replies
    144
    Views
    23,012

    Hi Cindy, you are not alone, I haven't had a...

    Hi Cindy, you are not alone, I haven't had a sense of smell or taste for a I don't know how long (although it doesn't stop me from eating..lol good old Pred), I find it really depressing when people...
  17. Hi Lisa, I haven't posted for a while either,...

    Hi Lisa, I haven't posted for a while either, there never seems enough hours in the day and life does not slow down for anyone!

    I totally understand how you feel about pred & methotrexate, I was...
  18. Replies
    44
    Views
    8,625

    Hi Christian, welcome to the group and I am sorry...

    Hi Christian, welcome to the group and I am sorry to hear you are feeling scared with the treatment you are receiving - some of us can totally relate to what you are experiencing with doctors but as...
  19. Replies
    8
    Views
    2,145

    Welcome Col, another Aussie on board hey!! Any...

    Welcome Col, another Aussie on board hey!!

    Any questions you have there will be sure to be a number of people that can help/support/advise!

    Katwoman
  20. [QUOTE=beeinformed;11486]Hi! So do you think...

    [QUOTE=beeinformed;11486]Hi!
    So do you think that all of the symptoms that I have described above can be attributed to wegener's?

    Yes it definitely is linked to WG - the watery eye and constant...
  21. Hi Beinformed, I hope my comments are helpful...

    Hi Beinformed,

    I hope my comments are helpful to you, I know how terrible it is to suffer problems with your eyes, especially when they are swollen an painful, I hope your doctor can ease the...
  22. Beinformed, I strongly suggest you see an...

    Beinformed, I strongly suggest you see an ophthalmologist, preferably one who is aware of WG, I had the same thing happening and it turned into cellulitus in the tearduct, believe me if you think its...
  23. Replies
    10
    Views
    3,116

    Lol and to think I nearly bought a croissant for...

    Lol and to think I nearly bought a croissant for lunch today ... phew!! :-)
  24. Thread: The Intruder

    by katwoman
    Replies
    19
    Views
    3,694

    I was reading Anna's post about sticking the...

    I was reading Anna's post about sticking the garden hose down the burrows and it remonded me of a story I read about here in Australia. We have funnel web spiders (they are poisonous) and they have a...
  25. Replies
    12
    Views
    3,541

    Hi Yvonne, I too suffer from watery eyes,...

    Hi Yvonne,
    I too suffer from watery eyes, especially my left side (I have already had a DCR on both eyes a couple of years back and the tube keeps the tear duct open, as it was blocking and causing...
Results 1 to 25 of 130
Page 1 of 6 1 2 3 4