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Type: Posts; User: PCrowle

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  1. Replies
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    Marta, Thank you so much for your reply! I am...

    Marta,

    Thank you so much for your reply! I am doing OK. No new symptoms since the weekend. But based on what you have told me, I am going to discuss this issue with my rheumatologist! I wish...
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    Marta, Are pulmonary emboli common with lung...

    Marta,
    Are pulmonary emboli common with lung involvement in GPA? I do have lung involvement with my GPA and was just diagnosed this weekend with DVT (deep vein thrombi) in my leg and PE (pulmonary...
  3. Thank you for reply!! I will look forward to a...

    Thank you for reply!! I will look forward to a bright future!!
  4. me2. Did I read you right, that you have had WG...

    me2. Did I read you right, that you have had WG for 36 years?!! That is amazing and encouraging. I means we can still live a long time even with this disease!
  5. I have asked that same question myself! How bad...

    I have asked that same question myself! How bad does it have to get before you can get treatment! My stenosis was 60-70% when I finally got surgery for it. I will not wait so long next time! The...
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    I had surgery for tracheal stenosis about two...

    I had surgery for tracheal stenosis about two months ago. My first trach surgery. I was 60-70% closed. It has improved my breathing greatly. The bad new is that my doc said it does come back and...
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    Gilders, Thank you for your reply. I saw it...

    Gilders, Thank you for your reply. I saw it first on my email and answered you there.

    Patricia
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    Pete, Thank you for your input. I am doing my...

    Pete,
    Thank you for your input. I am doing my best to try to stay healthy and stay on my meds! I can't help wondering, though, what the very long term effects of prednisone and methotrexate are.
    ...
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    Longevity with GPA

    I am new to the forum and I read the post from the Australian Lay who had had GPA for 29 years! It prompts me to ask what is our likely longevity with this disease? My mother lived to 103. I am...
  10. Willsy, Your amazing story promps me to ask how...

    Willsy,
    Your amazing story promps me to ask how long we can live with GPA in general? I was diagnosed a year ago, but had symptoms for about 2 years before that. I am 75 years old and, like...
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