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I haven't posted in a while but one thing that always bothers me about my course with Wegners is that I have stayed at a high Sed. rate. After a long treatment with predisone I seemed to reach the...

Thanks Dirty Don. I do take two folic tablets daily but for some reason the hair continues to fall out if I take any larger dose of the medicine. I still have some loss now but it is manageable.

We are pretty close on meds, im so blessed. I am taking 100 mg of imuran and 7 weekly on methotrexate. My doctor has offered to let me increase again on the methotrexate but I am hesitant. It...

I haven't been on here in quite a while but it always comforting to know this site is here to look back on. I have been diagnosed with Wagner's now since 2011. I have really done quite well and...

My hair thinned dramatically on MTX. I was devestated as I had really thick hair. We evetually redused my dose and added Imuran to replace the difference and fortunately the thinning stopped.

I think only the heavily medicated can appreciate this one. My husband who usually picks up my meds at cvs got a call tonight from the manager. He just wanted to call and say thank you for being...

What terrible news when it rains it pours with this disease. Hang in there. I wish you a very quick recovery.

Hello to everyone! I haven't been around for a while and fortunately that seems to have a direct link to doing better. I looked back at some of the things I had wrote before and how I didn't know...

BI hope you can work out a plan Brook. I know I was wanting a second child when I first got diagnosed but now I don't feel like I am up to it. At that time my doctor was thinking Imuran would be...

I haven't been here in a while and I cannot express in words how sad this makes me. I wish his family and all of his dear friends on here all the best. He will be truly missed!

I love the Rituxin question about why it does not always work. I just started round 2 last week. It's only been 5 months since I did it last so I'm really hoping it works this time. I seemed to...

I had the H1N1 vaccine about 6 months before I had symptoms of Wegs so I'm not to sure that was the actual kicker for me but who knows. I did get toothpaste in my eye a couple of weeks before...

Shadow hang in there! I'm sorry to hear about the blood clot this happened to me two months ago when a clot moved from my leg to my lungs. I've never taken Cytoxin so I can't comment on that but I...

I think you are very entitled to having some emotional moments after dealing with so much for 5 years. You are such a strong person and I'm very greatful for all you do for everyone on this site. I...

This is a very interesting subject. I think my fear of dying is mostly related to leaving my loved ones behind. I don't want to miss a moment of my son growing up. I worry about that everytime...

I just started MTX 3 weeks ago and the only issue I have had is some slight stomach issues for a day after I take it. I actually have been feeling a little better with it so hopefully it is going to...

Neat! I'm on there.

Keep hanging in there Sangye! I really appreciate how you spend your time even feeling lousy trying to help everyone out on here. You are so helpful!!! Definately get out and see some light if...

Thanks Sangye. I was thinking it might be a vasculitic rash too. Man, I just want to be in remission for a while. How are you feeling today?

I've had a couple of odd things going on and I'm not sure if they are related to a
Wegner's flare or something else I was wondering what you guys thought.
I have a few tiny red dots popping up on...

Welcome to the group!

I work in education as well which certainly adds on another battle. Now that I am on all those immune suppresent drugs it is so hard not to get sick. I had the Rituxin as...

You guys really are the best. Thank you for all the kind words and thoughts you send. This is a hard road for many of us and no one better understands than those facing many of the same challenges.

I've recently found myself feeling very down in the dumps with this disease even though I have been feeling better since my last battle with the blood clot. I think it is because I am exactly at the...

I have to go with the pred it is the worst. First of all if you don't get it down with the first swallow it tastes terrible!!! But then there are so many side effects. Right now my feel are...

Speaking of acid reflux - I seem to have it in a very strange way. I frequently have the sensation that food and drink are stuck in my back. Does that happen to anyone else?
I take Pepcid twice a...