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Well, here I am at 10 years post dx. Thankfully, there’s very little to report on the GPA front. Still off pred. Taking bactrim 3x weekly. Getting ready for either a 500 mg rtx in March or my COVID...

drz

Here’s what the study gave as participants:

“Patients with vasculitis in North America were invited to complete an online survey through the Vasculitis Patient‐Powered Research Network in...

Interesting study...

https://onlinelibrary.wiley.com/doi/10.1002/acr2.11204

My creatinine while on bactrim is consistently in the 1.4-1.6 range. It's stable, and I feel well, so my docs (Villa Forte and the PCP) and I have agreed not to worry about it. My eGFR is...

I take bactrim 3x weekly while on rtx (and every other immunosuppressant I’ve ever taken).

Thought this might be helpful...

https://www.washingtonpost.com/health/2020/12/15/moderna-vaccine-found-safe-effective/

Masha

Tell your hubby flattery will get him everywhere. 😂😂😂

gilders

I recovered completely from the fall and aftermath. My PCP and rheumy both said the kidney cysts were nothing to worry about. And they run in my family. All is good here. The kids and...

A little more info regarding JohnS conversation with Dr Villa Forte. She called me at about 7:00 last night. So far, the vaccines are OK for us weggies. The trick is getting the shots timed around...

Especially if you’re taking methotrexate, hair loss is a side effect. You can take folic acid to reduce hair loss.

Hello Susan B!! Welcome to the club nobody wants to join.

You certainly had a time of it before dx. Glad to see you’re well on the way to recovery. Keep on keeping on.

Dutchie

Welcome to the club nobody wants to join. Congrats on the triplets!! Hope they are doing well.

Several folks on here have saddle noses. I’m tagging Alysia and annekat and hope they’ll...

JBee

I had SLT on both eyes to relieve the pressure in my eyes about six months before wegs appeared. It’s a laser procedure to open the “drains” in the eyes. It’s painless and recovery is just a...

Hi dalatingod

Welcome to the club nobody wants to join. Glad you found us, though.

My GPA journey started similar to yours with an ear infection that wouldn’t respond to the usual treatment....

A couple thoughts...

Many of us weggies take bactrim as prophylaxis for PCP pneumonia. It’s a sulfa drug that should also help clear up systemic infections.

Localized infections usually result...

cbaker0812

I was on methotrexate for about two years from 2012-14. I was taking 20-25 mg/week. After about 18 months, I thought the side effect of fatigue had become excessive. By then, I had been...

The “highball” Dirty Don refers to is typically solumedrol (steroid), benadryl (antihistamine for possible allergic reaction), and tylenol. I’ve had 15+ infusions. The evening of the infusion, I...

@ShellLeighScott

Actually, you’re in better luck regards finding a local GPA specialist. Mayo Clinic has a facility in Phoenix that Dirty Don goes to. He’s doing pretty well, and I hope he’ll...

Ljj

Welcome to the club nobody wants to join. You'll find lots of info and support here.

I was retired when GPA hit, so I didn't have that stressor in my life. I hope your employer will be...

I got my flu shot early in September because my rheumy wanted me to get it before my rituximab on September 22.

Vaccine is dead virus. I’ve been getting flu shots for at least 30 years and never...

ilias

Wilkommen!! I’m glad you found us, but sad that you are so sick. GPA is so different in its presentation, and that makes it difficult to diagnose.

I hope your vision will return. I don’t...

Hi @Gram24

Sorry to hear about your granddaughter. Sounds like she’s having a rough time with it. I hope she can get into remission soon!! Please keep us posted about her progress.

This is a...

Steroids reduces the severity and duration of COVIS-19.

Happy birthday annekat!!

I went to the OSU ENT Clinic to see what could be done about my ear wax issue. The audiologist found no issues with my hearing aids, but a quick look into my right ear confirmed why I couldn’t hear....