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Type: Posts; User: Peter Marsham

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    Re: Covid vaccins and WG

    Donít know about elsewhere, but in Australia we start rolling out mid February. Weíre vaccinating essential/health workers first, then over 70s and people with comorbidities, then decreasing risk/age...
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    Re: research so far indicates vaccine is safe

    Thanks for the info and link, makes good bedtime reading. Am I being presumptuous in thinking 2021 may just be a tad better than that other year?
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    Re: Coronavirus and GPA

    Hi Alyssa, nice to see you back, and good to see your family is getting good care. Just make sure you let us know if you grow elbow horns or get laser vision.

    weíre still waiting for the rollout...
  4. Re: UTI and antibiotics after RTX infusion

    I’m on prophylactic Bactrim twice a week for over a year now, with mycophenolate and bi-annual Ritux infusions. My rheumatologist insists on it. I don’t think off-the-shelf antibiotics will hurt you,...
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    Re: Question via email: Falls and tremors

    Good point, sinus issues can cause inner ear disruption, like when you get dizzy with a head cold. We all know Wegs likes the respiratory tract, so maybe there's a link that way with balance issues.
  6. Re: New User with no diagnosis. Looking for advice.

    Sorry to hear youíre being put through the wringer, mate. I have to agree with gilders, nasal biopsy is a good indicator but certainly not definitive. I had very little upper respiratory involvement,...
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    Re: New Member diagnosed in 2017

    My initial cANCA count was about 600 when first diagnosed, it’s now down to 4.7. Good enough that my blood tests are monthly now instead of weekly. Your numbers can and will vary as the treatment...
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    Re: Question via email: Falls and tremors

    I don’t have coronary issues, but have had some ataxia in my left leg which may or may not be associated with restricted blood flow to my hip joints. And occasionally I do get marked weakness and...
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    Re: Covid vaccins and WG

    I’ve been watching the UK Pfizer vaccine rollout from Australia. Any English Wegs patients have any further info from their specialist on the viability or other of this vaccine? Especially regarding...
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    Re: The Four Stages

    5. You sit on the porch with your taser, daring Santa to try that ďhome invasionĒ shit.
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    Re: Wegeners charity

    Thanks Michelle, amazing thing is I never even found this on a normal search. Guess the search algorithm is geared toward selling shoes.
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    Re: Celebrate how far we have come!

    Geez drz, reading your experience makes me realise that I got off pretty easy with my life-threatening autoimmune disorder (I refuse to name it because itís a mean little shit which doesnít deserve...
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    Re: Wegeners charity

    Iíll keep this link handy. Thanks for all the info everyone.
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    Re: Wegeners charity

    Thanks for that, Iíll get in touch with Andrew and get some details as a start. If you do think of anything else, let me know.
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    Wegeners charity

    Hi everybody!

    (hi Dr Nick!)

    I was wondering if anybody might have information on charities or financial support for Wegs or vasculitis in general. I already give some spare change to various...
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    Re: New Member ~ Phoenix, Az

    Hiya Michelle,

    sounds like things are going ok for you, and healthy eating and exercise is good no matter what. I actually took up jogging a year ago, although for me itís more like a Zombie walk...
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    Re: Covid vaccins and WG

    Found this link...
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    Re: New Member ~ Phoenix, Az

    Hi Michelle,

    your story and mine sound a bit similar, sounds like you were able to get on top of it early on, which is great news for preventing further flare ups. You’ll definitely welcome the...
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    Re: Infections from mosquito bites

    My first Wegs indication was a huge body rash, allergic reaction to some fabric or pollen. My dermatologist suggested plain old steroids and threw six tubes of topical Eleuphrat at me (betamethasone...
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    Re: One year in, greetings from Australia

    Hi Michelle, and never fear, soon as I kill it, I’ll drag the body out while wearing my suspicious safari suit and pose for the hero shots. Unfortunately I don’t have a FaceTube on my inter web,...
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    Re: One year in, greetings from Australia

    That sounds like youíre living the dream. I donít think I have to remind you to do your blood tests and stay with your doctors, etc. in the end, itís just a thing, like any other thing.
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    Re: One year in, greetings from Australia

    drz, I can say the specialists I have are brilliant, and I seriously wouldnít have made it this far without them. And letís face it, as far as life-threatening incurable conditions go, I think I got...
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    Re: One year in, greetings from Australia

    Hi Andrew,

    Thanks for the reply, I’m in Southport in the Gold Coast. ATM I’m down to 5mg Panafcort daily, my blood sugar is fairly good atm, and I was really lucky to get a top rheumatologist and...
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    Re: Nose Bleeds

    I got slow nose bleeds before I was first diagnosed, there is upper respiratory involvement, but if your numbers are good, it may just be dry weather. I’d mention it to my physician, but wouldn’t...
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    One year in, greetings from Australia

    Hi everybody! Letís just jump straight to the beginning.

    Late august 2019 (just before our Spring) I started getting a large rash from the neck down all over my torso and upper limbs. I initially...
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