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Don’t know about elsewhere, but in Australia we start rolling out mid February. We’re vaccinating essential/health workers first, then over 70s and people with comorbidities, then decreasing risk/age...

Thanks for the info and link, makes good bedtime reading. Am I being presumptuous in thinking 2021 may just be a tad better than that other year?

Hi Alyssa, nice to see you back, and good to see your family is getting good care. Just make sure you let us know if you grow elbow horns or get laser vision.

we’re still waiting for the rollout...

I’m on prophylactic Bactrim twice a week for over a year now, with mycophenolate and bi-annual Ritux infusions. My rheumatologist insists on it. I don’t think off-the-shelf antibiotics will hurt you,...

Good point, sinus issues can cause inner ear disruption, like when you get dizzy with a head cold. We all know Wegs likes the respiratory tract, so maybe there's a link that way with balance issues.

Sorry to hear you’re being put through the wringer, mate. I have to agree with gilders, nasal biopsy is a good indicator but certainly not definitive. I had very little upper respiratory involvement,...

My initial cANCA count was about 600 when first diagnosed, it’s now down to 4.7. Good enough that my blood tests are monthly now instead of weekly. Your numbers can and will vary as the treatment...

I don’t have coronary issues, but have had some ataxia in my left leg which may or may not be associated with restricted blood flow to my hip joints. And occasionally I do get marked weakness and...

I’ve been watching the UK Pfizer vaccine rollout from Australia. Any English Wegs patients have any further info from their specialist on the viability or other of this vaccine? Especially regarding...

5. You sit on the porch with your taser, daring Santa to try that “home invasion” shit.

Thanks Michelle, amazing thing is I never even found this on a normal search. Guess the search algorithm is geared toward selling shoes.

Geez drz, reading your experience makes me realise that I got off pretty easy with my life-threatening autoimmune disorder (I refuse to name it because it’s a mean little shit which doesn’t deserve...

I’ll keep this link handy. Thanks for all the info everyone.

Thanks for that, I’ll get in touch with Andrew and get some details as a start. If you do think of anything else, let me know.

Hi everybody!

(hi Dr Nick!)

I was wondering if anybody might have information on charities or financial support for Wegs or vasculitis in general. I already give some spare change to various...

Hiya Michelle,

sounds like things are going ok for you, and healthy eating and exercise is good no matter what. I actually took up jogging a year ago, although for me it’s more like a Zombie walk...

Found this link...

Hi Michelle,

your story and mine sound a bit similar, sounds like you were able to get on top of it early on, which is great news for preventing further flare ups. You’ll definitely welcome the...

My first Wegs indication was a huge body rash, allergic reaction to some fabric or pollen. My dermatologist suggested plain old steroids and threw six tubes of topical Eleuphrat at me (betamethasone...

Hi Michelle, and never fear, soon as I kill it, I’ll drag the body out while wearing my suspicious safari suit and pose for the hero shots. Unfortunately I don’t have a FaceTube on my inter web,...

That sounds like you’re living the dream. I don’t think I have to remind you to do your blood tests and stay with your doctors, etc. in the end, it’s just a thing, like any other thing.

drz, I can say the specialists I have are brilliant, and I seriously wouldn’t have made it this far without them. And let’s face it, as far as life-threatening incurable conditions go, I think I got...

Hi Andrew,

Thanks for the reply, I’m in Southport in the Gold Coast. ATM I’m down to 5mg Panafcort daily, my blood sugar is fairly good atm, and I was really lucky to get a top rheumatologist and...

I got slow nose bleeds before I was first diagnosed, there is upper respiratory involvement, but if your numbers are good, it may just be dry weather. I’d mention it to my physician, but wouldn’t...

Hi everybody! Let’s just jump straight to the beginning.

Late august 2019 (just before our Spring) I started getting a large rash from the neck down all over my torso and upper limbs. I initially...