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Type: Posts; User: ShellLeighScott

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    Re: Recovering from symptoms question

    Hello Alan! Welcome!
    My Wegs is/was just upper respiratory and my onset of symptoms were January 2018 with going on Methotrexate, Folic Acid and Prednisone, at end of March, once diagnosed. It is a...
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    Re: New Member ~ Phoenix, Az

    Hi Pete! How are you doing? Still in Ohio? I hope your Wegs is remaining at bay!

    Take care!
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    Re: New Member ~ Phoenix, Az

    hahaha Peter! love this post and yes I know I am seeing it quite late. I did not hit 50lbs! it stayed just under at 49! sooo close! But I am back on track and encourage everyone to know just watch...
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    Re: New Member ~ Phoenix, Az

    Hello Don and everyone!

    It has been a very long time since I have been on here but I think about this support chat all the time. The most un-exciting things I have been dealing with are...
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    Re: New Member ~ Phoenix, Az

    Nice to meet you Peter! Thank you for your advice and encouragement. I hope you are well at this time!

    I am on just 5mg of Prednisone currently! So weight loss is possible. My ravenous hunger was...
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    Re: Flu shot or not during COVID 19?

    I have gotten the Flu shot every year since being diagnosed in 2018 and in 2019 got my first pneumonia shot that is good for 5 or 10? years if I recall correctly. Prior to 2018 I had never gotten the...
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    Re: Your Thoughts on Dying.

    watersedge

    Hello, thank you for this share because I will now always carry with me a knowing to be on constant alert of the sneaky side of this disease and to stay vigilant in my care and...
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    Re: Your Thoughts on Dying.

    Hello friends,

    I am reading all your posts and appreciate the conversation. I am afraid of dying since I was a small child and that has deep down never changed I guess and my gut reaction to the...
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    Re: New Member ~ Phoenix, Az

    haha Richard! I do feel the weight gain piece of this too; I gained 25lbs early on from prednisone.

    Thank you so much for the feedback of the meds being a frustrating part of this. It's hard to...
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    Re: Extremely Frustrating Flare.

    Hi Brit!

    I can relate to the frustration of Wegener's 100% and I am sorry! For me it has been constant with new/different symptoms throughout my 2 1/2 years and at this point I look at it like...
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    Re: New Member ~ Phoenix, Az

    Hello Don ~ Thank you so much for the name of your doctors at Mayo! And I am certainly up for the challenge and persistence of getting in to see the specialists as I learned very early on! And right...
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    Re: Need a referral

    Hello Don, if you are still on this forum ~ who is/was your doctor at Mayo Phoenix? This may be a great option for me in my pursuits of a specialist that is very familiar with treating Wegener's...
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    New Member ~ Phoenix, Az

    Hello friends,

    My name is Michelle from Phoenix, AZ. I have been on the whirlwind Wegener's adventure that started in January 2018 when I was 46 years old. I was diagnosed very early thanks to an...
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