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    liver enzymes have been fine so far....

    liver enzymes have been fine so far....
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    Imuran and Methotrexate together?

    Anyone taking Imuran and Methotrexate together? My new Rheum. put me on this back in Sept. and I have successfully been able to decrease Prednisone, so far, down to 2MG and counting! I feel pretty...
  3. Can anyone tell me where I can find Dr. Levobics surgery abstract?

    once before, someone on here was able to give me a link to a paper that Dr. Levobics had written about the details of the ss surgery that he performs. Does anyone know where I can find that?
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    sorry! i meant to put "Jodi" lol

    sorry! i meant to put "Jodi" lol
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    jan...what kind of surgery did you have and...

    jan...what kind of surgery did you have and where? i have a trach and dilations havent worked...is this a dilation surgery? nicole
  6. thanks for the info guys! i called and checked...

    thanks for the info guys! i called and checked with my insurance and they cover dr lebovics, and he takes my insurance too. Im excited! Im gonna see who will fly me up there! you guys are great.
  7. jan...i have the trach because the area above my...

    jan...i have the trach because the area above my vocal chords narrowed down to 5mm. since then, weve gotten bloodwork under control and my throat has been stable. i too, think that my throat is...
  8. sangye...what orgs help with airfare?

    sangye...what orgs help with airfare?
  9. well, my rheumy tried to call him to have him...

    well, my rheumy tried to call him to have him consult with her and he never called her back. I know he's busy. My ENT doesnt seem to think that going in and "messing" around will do any good, and i...
  10. So is this surgery considered airway...

    So is this surgery considered airway reconstruction surgery, or is it dilation? My dr is so scared to do ANYTHING with my airway until he says i get completely off prednisone, which my rheumy has...
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    elephant, im feeling pretty good. no real...

    elephant,
    im feeling pretty good. no real issues at the moment. i go for bloodwork next week, so wish me luck. how are you feeling?
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    Hi guys...so disappointed bc they called and...

    Hi guys...so disappointed bc they called and rescheduled my ent visit until feb 24th! Now i have to wait another whole month. I was soooo excited to see what he was gonna say, but everyone keeps...
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    well, my ent at vandy called it webbing, but...

    well, my ent at vandy called it webbing, but basically its just where the tissue of my airway was inflammed to the point where it was only open 5mm wide...the size of a straw. not sure why they used...
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    momof3, I have also been on the tablets and...

    momof3,
    I have also been on the tablets and will start injections today...we are trying it to see if we get better pr3 results. Did you have an improvement in your blood levels when you started...
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    i go back to the ent on jan 27th. we (the rheumy...

    i go back to the ent on jan 27th. we (the rheumy and me) are trying the taper again...its time to taper to 7mg, but im not until next month bc she wants me to start giving myself mtx injections for...
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    lisa my ent wants me to be on the lowest...

    lisa
    my ent wants me to be on the lowest dose of pred. that i can be on before he does the surgery to remove the "webbing" in my airway...i achieved "remission" in july and so e started...
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    btw, i am tapering slower now, 1mg every...

    btw, i am tapering slower now, 1mg every month...and i have a trach.
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    I am on 8mg of prednisone and 5 tabs of mtx...

    I am on 8mg of prednisone and 5 tabs of mtx weekly...i am considered in remissiion, but when i tried to taper to 7mg, my pr3 became positive again, of course, we were tapering 1mg every 2 weeks, and...
  19. Thread: Rituximab

    by ticklytoes
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    thats a bummer...al i can do is hope that my ins....

    thats a bummer...al i can do is hope that my ins. is really good, and not so strict i guess ;0( Like i said, im in remission, but i have to be on mtx and 8mg of pred to keep it...I would love to be...
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    Methotrexate tablets or injectable?

    My rheumy wants me to try the inj mtx to see if it will cause better results since its absorbed better...anyone have any info about this? Has anyone switched from tabs to injectable form and seen...
  21. Thread: Rituximab

    by ticklytoes
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    sangye, yes, i have an awesome rheumy :) i...

    sangye,
    yes, i have an awesome rheumy :) i love her! I asked her about Rtx today and she said the major thing is cost...hard to get approved since Wg isnt a laveled use. She was all aboard for...
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    hi lisa...i am on mtx and 8mg of pred at the...

    hi lisa...i am on mtx and 8mg of pred at the moment.trying to taper, but i think im at the stopping point bc my pr3 is borderline again. My ENT wants me to be as low on the pred as i can go, so we'll...
  23. Thread: Rituximab

    by ticklytoes
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    sangye How long do the injections take when...

    sangye
    How long do the injections take when you go...Ive heard its 6 hours...is that true? How are you feeling a now, a little after the treatment? I am on mtx and 8mg pred, and this seems to be...
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    remission

    hey lisa...
    I am on 8mg right now...suppose to taper to 7mg Friday, but Im scared ;( how are you
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    Lisa... Its Nicole (ticklytoes)...did you...

    Lisa...
    Its Nicole (ticklytoes)...did you get your trach out? Still have mine...go back for check up at the end of january...almost exactly a year from when i had it put in :( looking forward to...
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