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  1. Replies
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    HA!! I can't even fin d out how to do this - Just...

    HA!! I can't even fin d out how to do this - Just block me please.
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    Now everyone knows what to do when they find the...

    Now everyone knows what to do when they find the 'memorial' map......BUT HOW THE HELL DOES ANYONE FIND IT IN THE FIRST PLACE WHEN IT IS NOT MENTIONED IN THE TITLES?
    You may know where it is hidden...
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    Last post on this by me as either I am being...

    Last post on this by me as either I am being thick, not explaning myself well or the site is happy with the status quo.


    Coming back to the site after some time of inactivity, I wanted to go to...
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    Dr Jayne (Addenbrooks) is the man. Worth getting...

    Dr Jayne (Addenbrooks) is the man. Worth getting your consultant to either refer you to him or consult with him if they are unsure about what's best for you.
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    Set up as per Pete. Mtx was getting me...

    Set up as per Pete.

    Mtx was getting me nowhere so pushed to get RTX. Had it 6 monthly for two years. No side effects. However, I found it 'ran out' after 4 months or so and the symptoms would...
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    Thanks - I had found this one Map link on...

    Thanks - I had found this one
    Map link on where our readers are located.
    and can see your link at the botttom of the page......but neither link titles would make me look for the candles...nor in...
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    Hmm, I don't seem to be able to find the 'candle...

    Hmm, I don't seem to be able to find the 'candle map'. Could someone direct me please?
  8. I think the government is trying to soften the...

    I think the government is trying to soften the blow of losing the rugby test series (amongst others) to the motherland :)
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    Rtx has worked for me - I was a bit scared when I...

    Rtx has worked for me - I was a bit scared when I had my 1st armful in case I had reactions, but no problems for me. Little/no side effects either. Rtx enabled me to get off Pred and all other meds....
  10. .......and now even less before the UK can have...

    .......and now even less before the UK can have some peace and quiet - Just wait and watch the Uk share prices zoom up - Lets hope the customs don't return Geoff too soon ;)

    Have a great trip...
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    We all cope with death and the dead in our own...

    We all cope with death and the dead in our own way.

    I always like to spend a moment or two once or twice a week just thinking their names - in the sad believe that they get points for being...
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    Nice to know she is still lurking :)

    Nice to know she is still lurking :)
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    A year down the line....has anything happened?

    A year down the line....has anything happened?
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    So after 5.5 years I can finally report that I am...

    So after 5.5 years I can finally report that I am off the pred :) It fought me right upto the end and on my final reduction , I thought it was gonna win. But two weeks in, the side effects have gone....
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    I think that by staying a single disease site,...

    I think that by staying a single disease site, everything is consolidated under a single site. If more are added, then information which may be important could be discussed on a different thread and...
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    To remember or not?

    Hi guys,

    been wondering if it is time to add a memorial section to the site.

    There have been a number of WGers how have passed on and IMO they should not be forgotten.

    I envisaged the title...
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    Perhaps, if Alysia lets us know the day of the...

    Perhaps, if Alysia lets us know the day of the funeral, we could all change our aviators for the day, to something Batman related in a show of respect for Phil. I think he'd have loved it. What do...
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    Nothing left to say. Agree with all the above....

    Nothing left to say. Agree with all the above. Alysia you are a real diamond and Phil's star will shine upon you just as brightly. Xx
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    I'm with you Alysia and Phil, all the way, in my...

    I'm with you Alysia and Phil, all the way, in my thoughts and with my love. xx
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    I remember the jack posted a photo of himself (or...

    I remember the jack posted a photo of himself (or a link) but 've not been able to find it. So if anyone does come across it, please let me know. Thanks
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    IMO, if you can manage to work, it is better for...

    IMO, if you can manage to work, it is better for you. You have less time to brood over things and it gives a sence of being 'normal'. Had you considered reducing your hours/part time? Best of both...
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    RATBAG Marta... made me cry !

    RATBAG Marta... made me cry !
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    Gosh that boy is greedy :) One problem not enough...

    Gosh that boy is greedy :) One problem not enough ehh? Mind you, if I got you to come and hold my hand...:)

    Give Phil my regards Alysia and bring that smile back to his face and take care of...
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    Like many people, I joined here when I was...

    Like many people, I joined here when I was diagnosed and scared to bits! It was those like Jack and Sangye who help me to understand WG and come to terms with it.

    I understand that Sangye is...
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    Jack - Rembered

    On 23rd September 2011, we lost an active member of this forum. He'd had WG for some 25 years. During this time, arguably some of the 'so called' cures which he was exposed to, worsened the...
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