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Type: Posts; User: Marley3562

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  1. Re: Curious...how many members work with this illness

    Tim...I can?t decide if my dr was being optimistic with time frame, or just something she writes for work notes.
    I feel that the Ritixumab has possibly helped me taper from 60 to 30mg. I am still...
  2. Re: Curious...how many members work with this illness

    She didn?t want me to return to work until I was in remission, which she felt she could obtain in 6 months
    I agree...best to push through and be active. My issue is my sight. Fluorescent lights...
  3. Curious...how many members work with this illness

    Hi.. it?s Marlene. I was correctly diagnosed with GPA July 2018. I have finished 4 week course of Ritixumab and am still waiting to see results. I?m not the normal Weggie, in that my disease...
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    Re: Newly diagnosed

    Hi...I have a question concerning completion of first round of Ritixumab infusions
    i finished 4 rounds on Ritixumab infusions 10days ago. I got through the infusions pretty wel - not terrible side...
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    Re: Newly diagnosed

    Hi...I have had my eye dr appointment and now have a new question.
    pressure in both eyes are slightly elevated, but maintained from previous appointment.
    my eye dr, did discover an “eye...
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    Re: New to Wegener world

    Hi...I love that I found this forum and others that are new, and anxious with this disease. I hope my post is finding you feeling better. I do feel that each week I learn more from my drs or others...
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    Re: Newly diagnosed

    Richard,

    thank you you very much for mentioning about keeping up with eye care.
    last time I was atete dr my eye pressures were up and that was before going up on prednisone dose. My vision is...
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    Re: Newly diagnosed

    Thank you for the advice.
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    Re: Sometimes it just honestly sucks !!!

    Hi...I’m new to the site and just saw your post. I had my 2nd Ritixumab infusion today, and today it finally dawned on me that I’m sick..really sick, and I’ve been trying to pretend to everyone that...
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    Re: Newly diagnosed

    Thank you for responding and for the advice. I just got home from my 2nd infusion. I ate breakfast before this one and I think helped some. I am having terrible headaches so dr has increased my...
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    Newly diagnosed

    Hi. My name is Marlene and I have found a lot of comfort reading everyone’s story on this forum.
    i was originally diagnosed with GCA in July of 2017. I was on high doses of prednisone and later...
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