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Thank you for all your kind thoughts! I still am suffering from shortness of breath. It’s really interesting on calls (I am a paramedic & I have gone back to work). I am unsure how much of it is...

Oh my goodness! I am so pleased you got better. It’s scary thinking that so many people whom get as sick as you did, do not recover well. I’m sorry you got the diagnosis but happy you found us! ...

Happy thanksgiving! I hope each and everyone of you are staying healthy and happy!
Natty


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So, I work in healthcare. I was Covid tested the week before because I had sinus issues and it was negative. I went on antibiotics. On the 6th I woke up and lost all sense of smell. I contacted my...

I was diagnosed with Covid on the 6th. It has not been kind to me. I have had bilateral pneumonia, nausea and vomiting-still. That being said, I am worried about an mRNA vaccine. It just does not...

DrZ,
Thank you for reviving this topic. I looked through all the posts, and it is difficult to comprehend the characters and people whom seem so alive... and whom aren’t with us anymore. It makes...

I recently watched a podcast with Dr Z and Dr Oriff, director of vaccine education at Philadelphia children’s hospital. He said in order for herd immunity to happen with a vaccine over 2/3 of the...

Hi everyone,
I am still working as a paramedic in St Louis. I was really worried when the pandemic came here. The fire dept I work for insists we wear N100 on every call and we wear simple masks...

I’m so so sad to read this. My heart is heavy for you, Alyssa and for Phil’s mommy. I hope she finds peace. You are all in my heart and in my thoughts.
Natrice


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Oh my goodness! Susan, you have been put through the ringer! I say quite often Wegeners is not for the faint of heart, hearing your story reaffirms my belief. I know you are new to this diagnosis but...

Happy belated birthday ladies! Hope you had a great day!
Natty


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Happy birthday!
What country do you live in?


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Hi everyone,
I work in healthcare. I’m a paramedic for a county in St Louis Missouri. I also am on Rituxin & this virus of course has been on the forefront of my mind. I’m due in April for a Rituxin...

Hi gliders,
So glad your kidney function has stabilised! It is a relief! Here’s hoping you continue to grow stronger every day!
Nattt


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Sajo,
Hope you are starting to feel better. Hopefully you have better luck on cellcept than I did! I find tapering on prednisone just plain sucks!
Natty


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Hi Jim,
Sorry you got this diagnosis but I totally understand that there is also relief knowing what is wrong. I feel like GPA is a terrible disease but when it’s under some sort of control you can...

Hi Weglee,
Your father has vasculitis? That’s interesting! There has been several debates about vasculitis possibly being genetic.
First off, when I was first diagnosed I was placed on methotrexate...

Hi annemarie,

When I was first diagnosed I was cANCA positive. For the past 4-5 years-I have been pANCA positive. My Dr considers it still GPA.
I hope you find a diagnosis soon & start feeling...

Hi Smashing,
I concur with everyone else. It sounds like you are treating your symptoms & though that may sounds great, there is still damage being done to your body which can be permanent.
Good...

Hi Karen,
Welcome to the forum. I am sorry and disappointed in your experience with Drs. I have had my share of ignorance from them myself. At least now you have a diagnosis and can work on feeling...

Hi Mel,
I was diagnosed in Sydney but have since moved abroad. I am sorry that you have felt alone in this journey but you are not! I have said before this disease is not for the faint of heart. I...

Hi Jan,
I do hope you are feeling better now. I know it can be overwhelming but us people diagnosed with GPA are hard core and never give up. You got this! We all are pulling for you!
Natty

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Aaron,
I concur with everyone here encouraging you to seek a second opinion from someone whom has experience with GPA. I would also encourage you to see an ENT with experience in this disease. I...

Hi Lea,
Welcome to the forum! I too had been diagnosed as “limited GPA”, this was 23 years ago. The thought being that no major organs are affected. I even had one Dr say that all the tests that...

Onirin,
It certainly sounds like you have had a tough go of it. It is frustrating when a simple test is negative and they have to go for the most invasive test for an answer. I, myself am fairly...