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Not too well. Going through emotions quietly.

Doctor took me out of prednisone for the first time to see if I was stable but the pain doesn’t let me live normal. Thinking of even quitting my job....

Hey Gilders,

I went to bed talking about you to my husband yesterday. Trying to vent how I was scared to get to the stage you are with your kidneys with the life style I bring myself in bad...

Hi Masha,

Yes I see that Gilders has a lot of knowledge. It makes a lot of sence Bc it’s not only reading and following your doctors order but truly how you feel inside with every act you do. And...

Hi Gilders,

If you only knew my face reaction after I read your post. Thank you. I actually went to research yesterday night abt kidney healthy meals and I read just what you said (enrolled in...

Hello Alysia,

Creatinine is at 1.45, last Rtx was on Nov 3rd. And about the Nephrologist I also though the same thing, but doctor said that the only treatment really is Rtx and I should give it...

Hi Pete,

Thank you for all that info, it’s good to know about the potassium. I love bananas I do eat them often. I’ll make sure I have one a day from now on. I’ll try to get the tonic water as...

Hi guys, hoping everyone is good. I’ve been a little nervous. As I said on my last post, my doctor monitores my blood every 2 weeks and from 60mg of prednisone he has been tapping it down little by...

Hi Drz,

Wow... what a story. To think you had to go through all that. And I was here complaining about my bad luck with one doctor. We do deserve the best when it comes to hard diagnosis. I mean...

Hello Natty,

Thanks so much for your reply. It gets me so sad For your only 4 months off meds. I really wish in the near future you can be off longer than that. But im sure since you have had this...

I am so mad for you, because it so relates to me at the beginning as well. I was so defensive for the last months before the last hospitalization, because I remember I was with my first flare and my...

Hi Gilders, thanks for writing. I know I’m getting to understand Prednisone now, it’s a very strong medication. Who knew this pill will have so much different effects on someone. It’s horrible! I get...

Thanks so much Alysia 😘🙏🏻

Thank God you are off the Prednisone. I have gained so much weight in 2 months. The moon face John! The moon face it’s bad! But im tapped down to 30mg this week. I feel better already. I’m not...

Hi Richard052018, thank you so much for your reply. You made my eyes watery. I will pray hard for more time for all of us too. I’m so happy your lungs are cleared and your hemmorage. Thanks for your...

Hi Kwnorton thanks for replying and sharing. Yes please enumerate when you can. I’m not sure why they wouldn’t give you all alternative of treatment for something so serious as soon as they could. Im...

Im sorry John that you went through the same thing, and on Christmas time, oh my! Believe me when I say I could understand what you went through now. Like the energizer bunny is right 😄 I cannot take...

Hi Masha, hug received!! You know I had colds and pneumonia in the past as well maybe I had this also for a long time. I read around posts that a lot of people were in stress around the time they got...

Hi Andrew, I will look into a good one I hope I have luck. Thanks for your reply. It means a lot to me that I’m not alone.

V

Hello everyone, I’m new at all of this. I am 34 years old. It has been very scary these few months but finally I got diagnosed. At moments I’m just so happy that at least I have an answer finally...