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  1. Thread: Cellcept

    by godgirl
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    1,204

    Cellcept

    Can anyone give me any info on it?

    I've been on mtx and aza at different times, but it only gets me to a "smoldering" stage. Doc put me on cellcept about 7 wks ago (2000mg day).

    Doc is...
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    Well, just an update, since it's been a month. ...

    Well, just an update, since it's been a month.

    And surprise, surprise, it was a flare. I ended up at my primary doc's office because the joint pain and face pain got so bad I was barely...
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    Thanks for your responses, everyone. FYI - I'm on...

    Thanks for your responses, everyone. FYI - I'm on 200mg of azathioprine as well.

    Update: Funny, saw the dentist and surprise, surprise - nothing wrong with my teeth. And the ENT scoped my nose...
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    Yeah, I wonder that. I've been having problems...

    Yeah, I wonder that. I've been having problems with severe joint pain since I got down to 4. Unfortunately, I think my wegs doc thinks it's my weight causing it. I think he's very wrong. It's...
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    Jaw Pain anyone?

    Question for you all.

    I went off the prednisone - finally - after three years. I went off two weeks ago. A couple of days in, I started getting a lot of facial pain, and now I can hardly eat or...
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    Thanks, Mike. That means a lot. Update: "No...

    Thanks, Mike. That means a lot.

    Update: "No new concerning findings" on my MRI!!! I am SOOOOOO relieved! As much as I would love to have a definite diagnosis, I certainly didn't want the wegs...
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    Thank you so much for the article, drz! It...

    Thank you so much for the article, drz! It helped - and explained a lot - but I'm still nervous.

    The imaging dept called last Friday (Sept 4) at 8am. My MRI was scheduled for 2pm the same day. ...
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    Thank you, everyone. And thank you, Alysia for...

    Thank you, everyone.

    And thank you, Alysia for pointing me to that thread!
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    Brain Involvement?

    For those of you who have had it, did you have any symptoms? I had an MRI back in March 2014 when all of this crud started up. They found scarring (the neurologist called the spots that), but said...
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    Don't feel foolish, Terri about looking for...

    Don't feel foolish, Terri about looking for support here. Seriously.

    I'm in the same situation as you are. I started with scleritis (eye) and went to hearing loss, and now have pain in my...
  11. Thread: Piroxicam?

    by godgirl
    Replies
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    507

    Piroxicam?

    Anyone heard of it?

    I emailed my rheumy this morning. I've been having issues with inflammed tendons in my left foot. I've noticed the pain is almost completely gone the morning after my mtx...
  12. Thread: Still Confused

    by godgirl
    Replies
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    420

    I've had two... and no diagnosis. My doc also...

    I've had two... and no diagnosis. My doc also won't diagnose without a biopsy.

    However, that said, they are treating me - because of damage done and possible future damage if they didn't treat...
  13. Thread: ent visit

    by godgirl
    Replies
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    Hey, Debra. I've had this happen on and off...

    Hey, Debra.

    I've had this happen on and off since all my other symptoms started. I also have no holes or perforations. It feels like my sinuses are cold and raw. And it can be painful! Sometimes...
  14. Thread: Eye issues

    by godgirl
    Replies
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    4,836

    My first visible symptom was scleritis. I've...

    My first visible symptom was scleritis. I've always had eye issues with all this.

    When I have a bad day with all this, they will be blurry and tire easy. They will also ache behind the eye, in...
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    I am just so relieved, everyone. Whew! ...

    I am just so relieved, everyone. Whew!

    Mrtmeo, my c-ANCA is negative. My regular rheumatologist said that it could be MPA, but I've been undiagnosed since all this began in Nov 2013. Since I've...
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    Had my second opinion

    Not at Mayo, but jumping through some hoops for insurance. The doc I saw is in the same office as my other one. As a bit of history, I saw my regular rheumy in Dec. I got done telling her that I...
  17. Thread: Measles

    by godgirl
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    2,003

    I don't get involved in the whole...

    I don't get involved in the whole vaccinated/unvaccinated debate. But I do have something that you guys might want to hear about, though.

    About 5 yrs ago, I started filling in at our surgery...
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    Trying the pred taper... Again...

    I know my doc wants me off the prednisone. I get that.

    But what's going to make this taper any better or more successful than the others?

    I like my rheumy - she's pretty cool. But I don't...
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    Angela, It's funny you mention sweating -...

    Angela,

    It's funny you mention sweating - especially from your head. I started on prednisone over a year ago, and I sweat terribly - with just any kind of activity. And usually only from my...
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    Leigh. I completely agree with Michelle. You...

    Leigh.

    I completely agree with Michelle. You do NOT suck. How could you? You saved a life! That, my friend, is amazing.

    You may be feeling bad, confused, conflicted, scared, etc, but again,...
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    Infographic on SNOT. Seriously.

    Thought this was interesting. Put out by Cleveland Clinic.

    What the Color of Your Snot Really Means (Infographic) ? Health Hub from Cleveland Clinic

    What I thought was interesting (and cool!)...
  22. Thread: Tendon issues

    by godgirl
    Replies
    19
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    1,609

    John - pretty sure it isn't gout. My mother had...

    John - pretty sure it isn't gout. My mother had it for years, and the pain is very different. My foot has very little swelling, and the pain isn't in the joints themselves, but kind of randomly all...
  23. Thread: Tendon issues

    by godgirl
    Replies
    19
    Views
    1,609

    Well, the hand pain migrated for a few weeks, but...

    Well, the hand pain migrated for a few weeks, but eventually went away. However, now I have random tendons in the same foot that are inflamed. <sigh> One along the outside of the foot, a couple on...
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    Actually, it ended up being fine. I took the best...

    Actually, it ended up being fine. I took the best care of myself that I could and got over it fairly quickly. I still bite my nails if someone comes into the office with a cough, but so far so good. ...
  25. OK. So an update... I've contacted my...

    OK. So an update...

    I've contacted my insurance and they will pay if I have authorizations for it. HOWEVER, the chances of me getting an auth aren't very good since they support second opinions...
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