Doing ok. Had Covid once for sure (delta) and probably omicron, too. Very thankful for the vaccine…I’ve had all 4 doses. Still in remission, sort of. Just need to be careful not to overexert…hard...
Type: Posts; User: Arleta
Doing ok. Had Covid once for sure (delta) and probably omicron, too. Very thankful for the vaccine…I’ve had all 4 doses. Still in remission, sort of. Just need to be careful not to overexert…hard...
I am a breakthrough COVID-19 survivor. My husband and I were both vaccinated in February/March. In July we went to visit some of my college friends in Iowa. I checked before to make sure everyone...
I had some hearing loss before GPA, but lost more after, especially in my left ear. I have sinus, lung, and kidney involvement. I have been in remission about 11 years. The hearing loss has...
Has anyone gotten shingles after getting the Shingrix vaccine? I got my first injection earlier this month. I had a sore arm, headache, some stomach ache, but it went away after a few days. One...
I am a retired teacher and have gotten flu shots every year since childhood. I have had GPA for about 12 years and have had flu shots every year with no problems. I also now get pneumonia shots as...
I have taken Imuran for about 9 years with no big problems. How I feel each day varies. Sometimes I do have some of the issues that you list, but most of the time I do ok. It is a maintenance drug...
There's not much you can do. I see a dermatologist twice a year. She checks for precancerous spots and recommends using a moisturizer. I've tried a couple prescription things, but nothing really...
Does anyone else have the rare skin condition called DSAP? I've had it for a long time...probably 30 years....way before Wegener's. It has gotten worse since Wegener's, though. I was reading an...
Thanks, Masha!
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Thank you for your response! Unfortunately, these are things I have been doing for years with no help. I've also been under a doctor's care for several years, had a sleep study done, etc. ...
I experienced this one time recently, also while in bed. It also went away upon moving around. I am not on any prednisone at this time. My feet and up my legs to my knees are always numb, toes and...
I once had an allergic reaction to contrast dye that presented like your symptoms. They had to flush it out of my system. Perhaps you are allergic to the pain med they gave you.
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So sorry to hear this. I also take Imuran, but 150 mg per day. I have tried to lower it a couple times, but symptoms come back. Next month will be my 10 year anniversary of the on come of symptoms....
I use Flonase. It works well for me. I tried to stop using it during the summer, but I got clogged up at night.
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My neurologist had me get a Fitbit about three years ago when I complained of poor sleep. I have tried all the usual things that help promote good sleep.... no caffeine, cool bedroom, limit screen...
I have taken Cymbalta for joint pain (knees mainly) for several years. Nothing else worked---injections, medications. I still have some pain, but it helps.
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Thank you for the work you are doing there. We have a neice, her husband, and 3 small children who lost their home in Santa Rosa.
I have had the most success when I use a product that contains...
Rachel, I have taken Imuran since going off cytoxin. I lost most of my hair when on cytoxin, but have had no hair loss with Imuran. I have been on it about 8 years now with no significant side...
Welcome, Mandy! Hope you will find friends and helpful information here! We are in it together!
Arleta
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Thanks for the info. I will check with my rheumi!
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Wow! You got a shingles shot? I thought we couldn't get that since it is a live virus.
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God be with you as you search for answers and solutions!
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I was actually diagnosed 8 years ago. At this time I am doing pretty well, all things considered. I have some permanent damage from the bloodclots which affect my legs (swelling) and other things...
It was to recover from Wegener's. I had a hard onset of it. Started with what I thought was a cold and then traveling arthritis. Then I became really out of breath and I was coughing up blood. ...