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Type: Posts; User: cwetter

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  1. Thread: Frustration

    by cwetter
    Replies
    2
    Views
    390

    Frustration

    Lately I have been so frustrated. There are all of these camps for kids who have diabetes or cancer but none for people who have vascultits. It is like nobody knows what it is. Our disease id life...
  2. Thread: Donation

    by cwetter
    Replies
    0
    Views
    471

    Donation

    Hey guys. Look at our profile. We are trying raise awareness for Wegener's!!
    <object classid="clsid:D27CDB6E-AE6D-11cf-96B8-444553540000" width="258" height="338" title="Click Here to donate!"...
  3. Replies
    138
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    11,485

    I do have sinus involvement. My doctor...

    I do have sinus involvement. My doctor recommended it to me and it didn't help me at all. It didn't help or hurt. But I know many people who swear by it.
  4. Replies
    14
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    1,938

    Thanks!! I am really happy to hear you daughter...

    Thanks!! I am really happy to hear you daughter can like a full life. I am constantly worried about weather or not I will be able to work or finish school, have kids, and much more. If you don't mind...
  5. Thread: Phx, Az

    by cwetter
    Replies
    3
    Views
    1,187

    Hey, I just moved back here a few weeks ago and...

    Hey,
    I just moved back here a few weeks ago and don't have a dr. Do you know anyone good?
  6. Thread: Phx, Az

    by cwetter
    Replies
    3
    Views
    1,187

    Phx, Az

    Anyone around phz, az
  7. Replies
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    1,938

    Accepting Wegener's at 19

    Hi my name is Catie. I was diagnosed with Wegeners in May of 2013. I have been sick since sixth grade. It all started with a pseudo tumor in the orbit of my eye. I was put on high doses of steroids...
  8. Replies
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    57,493

    Thank you for sharing this. It is really nice to...

    Thank you for sharing this. It is really nice to know it gets better and we can all live a "normal" life after this. At least as normal as we can get right?
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