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Type: Posts; User: John S

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  1. Re: prescription process- the path from the Dr to the Pharmacy

    Patti, in Dr. VillaForte’s office has been wonderful in making sure that everything runs smoothly for me. I get the Rituximab infusion every 6 months. She sets up my appointment three months in...
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    Re: What is the smallest dose of Rituxan?

    I am allergic to Sulfa so I can't take Bactrim. I do get a monthly breathing treatment of Pentamidine in it's stead. I have not had any infections.
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    Re: What is the smallest dose of Rituxan?

    What antibiotic are you taking with the Rtx?
  4. Re: shankxonline - My path to identify GPA and overcome it

    what is your sed rate?
  5. Thread: Strict Dieting

    by John S
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    Re: Strict Dieting

    Over the last few months, my old eating habits came back. One day I realized that I had packed 15 pounds back on. I've been on my strict habits again for 4 days and am determined to lose the 15 plus...
  6. Thread: Liver Spots

    by John S
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    Liver Spots

    I have recently developed two small "liver spots" on my left arm. I don't think it is of immediate concern but I sent an email to my Doctor about it. They might just be because I'm old.
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    Re: hearing loss/baha

    My wife is convinced that I need a hearing aid. Every time I say something to her she asks "What?"
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    Re: Trying to learn all of this

    It took her a couple of weeks to make the diagnosis. She thoroughly went through my text results, scans and records before making the correct conclusion. She also came up with a wonderful treatment...
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    Re: Trying to learn all of this

    She is the absolute best! I initially went to her because I had mixed test results like yours. Some thought I had Lyme disease, some thought GPA, others were just treating symptoms. Dr Villa Forte is...
  10. Re: shankxonline - My path to identify GPA and overcome it

    my eyes have been fine since I went on retuxin
  11. Re: shankxonline - My path to identify GPA and overcome it

    Early in this disease, before it was diagnosed properly, I was having double vision. At one point , my right eye swoll up. The doctors were then treating my symptoms. Lots of Prednisone brought my...
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    Re: Got a cold, should we go to doctor?

    So, has the condition passed or gotten better. Inquiring minds are nosey as Hell.
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    Re: 1000mg or 2000mg rtx ?

    I got a 1000mg infusion today. Dr VillaForte told me that in six months, she might reduce it further to 500mg. I had a 1000 infusion six months ago and prior to that, I was getting twin infusions...
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    Re: 1000mg or 2000mg rtx ?

    I'm heading to Cleveland. I'll see Dr VillaForte and get some RTX tomorrow. Now I'm full of fear that it may lose it's effectiveness. I am enjoying life immensely since I started on it. It's a whole...
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    Re: new member with question regarding remission

    Atmy sickest, my SED rate was 107. In remission, it is consistently 8. Nasal crusts are rare. Headaches are sporadic but not as devastating. Rituxin baby!
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    Re: new member with question regarding remission

    What was your SED rate before? Have the nasal crusts slowed down? Are the headaches and fatigue lessened?

    Many of my symptoms slowed significantly after a few treatments. It has taken me about two...
  17. Thread: Strict Dieting

    by John S
    Replies
    51
    Views
    7,369

    Re: Strict Dieting

    Nice guitar. National?
  18. Thread: Strict Dieting

    by John S
    Replies
    51
    Views
    7,369

    Re: Strict Dieting

    Diet? What diet? Gimme that box of donuts dammit!

    After the holiday I need to get back to celery and water
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    Polymyalgia rheumatica

    My sister has been diagnosed as having Polymyalgia rheumatica. Her treatment is Prednisone. She told me that she had pretty much been chair bound for the last two years before she was diagnosed. ...
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    Re: Your personal experiences in treatment?

    Prior to diagnosis, I was unable to work. Luckily, I was qualified for Medicare and Social Security. I was going in and out of the hospital every other week as the Physicians treated symptoms but not...
  21. Thread: Strict Dieting

    by John S
    Replies
    51
    Views
    7,369

    Re: Strict Dieting

    I've lost all sense of diet and need to re calibrate my tongue. In the meantime, I hopped on the bike and rode 6 1/2 miles today. I haven't gone that far in a couple of years. I'm using a heart rate...
  22. Thread: Strict Dieting

    by John S
    Replies
    51
    Views
    7,369

    Re: Strict Dieting

    March was not good to my diet plan and lifestyle. I'm up around 5 pounds right now. Last week I took the extended family to Disney World. We had one of those meal plans and I am not one to waste...
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    Re: Celebrate how far we have come!

    Last week, I went to Disney World. I rented a scooter for myself so that I could keep up with the family. I blew my diet. Now I'm tired but happy.
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    Re: Songs about Wegener's?

    Happy St. Patrick's Day


    I went to the Doctor with headaches bad
    They were the worst that I ever had
    They took me in and ran the tests
    Ultrasound, cat scan, blood and the rest

    They gave me...
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    Re: Songs about Wegener's?

    Whenever someone says "It's nice to see you" I answer "Better seen than viewed".
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