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Ugh PML is horrifying. I was under the impression that it was more likely to happen early in treatment but I guess I need to do more research. I’ve been on RTX for 10+ years.

I had steroid myopathy--muscle weakness caused by the prednisone. One the many areas it affected was the muscles at the back of my neck. It made it hard to hold my head at certain angles without...

I am a rare poster and frequent reader, one of many I imagine who has been informed by Phil's knowledge, heartened by his humor, and rooting for him during this latest and final struggle. I was at...

Thought this might be helpful or at least interesting for Nancy:
Vasculitis Center to Open in Salt Lake City, Utah - Curry L. Koening, M.D. | Vasculitis Foundation

Dr. Koenig was a fellow at the...