your not freaking out for nothing, it is scary taking all the meds we have too
but here is the best help and support u can get
and fatigue is the main thing at 6 tablets hon
good luck xxx
Type: Posts; User: Jayne 14
your not freaking out for nothing, it is scary taking all the meds we have too
but here is the best help and support u can get
and fatigue is the main thing at 6 tablets hon
good luck xxx
Well I've been to the docs, I'm now on that stomach protecting stuff, and also iron tablets 3 x a day as very anaemic and got to have a camera up my bum ( yuck yuck ) as hospital not sure what's...
I was told pain in the legs was due to the pred we take & not drinking enough water , it's horrible I know
I'm not taking any stomach protection - assuming that's what you asked about
the pain I get is of the chart , thankfully I've pain killers ( co coda mol ) to help but they only mask the pain
im at...
Honey you need to call your doctor , pain like this is intolerable & you need something to help get it under control
Now it appears I may have a stomach ulcer , awaiting a camera down throat & scans
bloody steriods
s slugs from nose are least of my problems
I'm assuming your talking about Ce Ce our neopolitan mastiff !!
yes about 75 lbs or so
Welcome Sandy
i think as everyone's suggested u need to find a doctor with wegners knowledge / experience
but for general support help & advice this is the place
good luck xx
The crazy things I blow from my nose have got quite a lot bigger of late , literally bigger than my little finger
is this usual ???
The fatigue we feel is hard for anyone to understand . Getting close friends / family to read the spoon theroy helped . And understanding my body too .
Big day = next day sleep / recover .
Pace...
NicShaf
Wow wow wow
Welcome to you& your beautiful miracle . He's perfect !!!!!
Great uplifting positive news
Wegners isn't the end . You've shown that 💕💕💕
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Chris
I am so sorry to hear this
Sending you prayers & love at this difficult time
And thanks to your support : your mum is now at peace
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Good for you Alicia
Getting As too
I've always jumbled the odd word so a chair / table mistake is nothing !!!
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Thanks Pete
Thanks Mishb
I had a feeling it'll be stay as it is, was just thinking out loud really
I miss my old energy levels !!! But I'm sure that's not all from MTX & a lovely gift from the...
So I've been on a dose of 20 mg of MTX since Christmas , going to my hospital app next week
What is likely to happen next folks ??? More of the same lower or higher dose ??
I do get fatigue that...
We are here always
That's when u know
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I am sending you my lovely lady a very large hug
Some people find grief to hard to deal with
Love as u shared is hard to mourn , we are here for you both
Be strong my friend xxx
Sent from...
Thank u all
I'm feeling much better , more fruit eaten - with active yoghurt every morning
Movacal taken
More water every day : and the pain has gone & no more tears , will never let it get so...
Thanks guys
I only currently take folic acid 1 a week ( not sure of dose )
And I am totally wiped out / tired for 2 days so will look into dose of folic acid & may try MTX in 2 doses same day
...
Thinking of u both
And saying a prayer too
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Any advice folks
I take 20mg weekly but have seen on here people suggest taking it in 2 halves??
How does this work , the next 2 days I'm wiped out with fatigue and wondering if this would improve...
Thinking of you
Hugs & prayers x
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Annekat
When I said better I meant my nose actually works a bit now
I can smell a bit now & then & actually breathe through it : before treatment I was a total mouth breather
It's still odd...
Cheers guys
I had let the meds to avoid it slip : I'd gotten complacent & then as you can guess total nothing
Drz have started on Movacal sachets that my doc prescribed ( had run out )
Pete : I...
Does anybody else really struggle with this ???
I am struggling , not going very much & in getting horrible pain in my side that drives me mad - taking painkillers to numb it which I'm sure also...