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  1. I guess that seems reasonable about starting...

    I guess that seems reasonable about starting lower and increasing if needed, regarding the Imuran. Im scared it won't hold me in remission?! I guess everyone has the same fear when switching/starting...
  2. Haven't posted in a while, as I returned to...

    Haven't posted in a while, as I returned to school/clinical and have been doing well. I was on cytoxan for three months, and I just made the switch to Azathioprine. I have started at 100 mg per day,...
  3. No problem. I'm in a fog most of the time anyway.

    No problem. I'm in a fog most of the time anyway.
  4. Also, hate to beat a dead horse, but this has...

    Also, hate to beat a dead horse, but this has really helped me to talk all this out with everyone.
    Thanks all.:rolleyes1:
  5. ArlaMo, I absolutely agree with you that the...

    ArlaMo,
    I absolutely agree with you that the bulk of physicians are motivated by more than money, etc. That wasn't my issue at all. I also understand that it must be tough to hear about those who...
  6. ArlaMo, I agree with you that one should not...

    ArlaMo,
    I agree with you that one should not equate lack of experience with non-caring or poor motives. My experience was a combination of lack of experience, the fact that I was a new patient to...
  7. Jolanta, Thanks for the support. I am taking...

    Jolanta,
    Thanks for the support. I am taking responsibility for this one, and from here on out. I will make sure he understands migratory arthritis and Wegener's, if he is going to treat me in the...
  8. It makes me feel good to know that there are...

    It makes me feel good to know that there are those who are happy with their care, and I also hope you never are made to feel what I felt. I am also very happy with my care overall over the past month...
  9. After having several days to think about this...

    After having several days to think about this experience, I have come to some realizations. I think that in large part this was definitely due to the physician being new to me and to Wegener's. So,...
  10. Therapy doesn't sound half bad, and even at this...

    Therapy doesn't sound half bad, and even at this somewhat early stage of the game, so to speak. I could probably use it, and especially since I dont exactly know why it bothered me so much.
  11. Thank you Sangye, I appreciate your caring...

    Thank you Sangye, I appreciate your caring remarks. Yes, of everything, this really bothered me the most. I can't pinpoint why, but I just can't describe the humiliation I felt. I guess the utter...
  12. I am not used to having to be aggressive. I agree...

    I am not used to having to be aggressive. I agree with you, it is necessary at times. This is just new for me, as I have never had to be on pain medication in my life. And now, I have to ask for pain...
  13. Here's one. So, your rheumy refers you to your...

    Here's one. So, your rheumy refers you to your primary care to sort out the prednisone related side effects. Keep in mind, I have no insurance right now, as I'm still waiting on the high risk...
  14. Thread: New here!

    by alhartzler
    Replies
    84
    Views
    19,449

    Thanks to Bob and pberggren1. I really think this...

    Thanks to Bob and pberggren1. I really think this site is good for our Weg souls! Other people who understand the unique frustrations that come with all this. Not even my family can really understand...
  15. Thread: New here!

    by alhartzler
    Replies
    84
    Views
    19,449

    Well, guess I have ear and sinus infection, with...

    Well, guess I have ear and sinus infection, with fluid in my "bad" ear. So, this stinks. I didn't really even know I had anything going on, but I'm on such a high dose of prednisone, doc says it is...
  16. Thread: New here!

    by alhartzler
    Replies
    84
    Views
    19,449

    Thanks. Chest feels better this morning. I should...

    Thanks. Chest feels better this morning. I should correct myself also, that when I went to CC I did feel a little different in the chest, but not quite as heavy or tight. Anyway, if this persists...
  17. Thread: New here!

    by alhartzler
    Replies
    84
    Views
    19,449

    Sangye, I am also hoping it means I am responding...

    Sangye, I am also hoping it means I am responding well and will continue to respond well. Had some nose bleeding today, but still minimal as compared to in the past. Had labs today, so will see how...
  18. Wegener's is a devastating, insidious,...

    Wegener's is a devastating, insidious, life-sucking, progressive disease. But, there is comfort in knowing there are others out there, who have feelings of heartache, despair, and doubt. While this...
  19. Thread: New here!

    by alhartzler
    Replies
    84
    Views
    19,449

    Sangye, Yes, thank you. I am wondering if it's...

    Sangye, Yes, thank you. I am wondering if it's cytoxan or prednisone, or a combination? I am just so happy that the nose seems to be improving. I hope you are well also. Thanks for noticing my small...
  20. Thread: New here!

    by alhartzler
    Replies
    84
    Views
    19,449

    Just an update. I've been on the CTX for almost 2...

    Just an update. I've been on the CTX for almost 2 weeks now. Not any major problems so far, just increasingly more tired than usual, and a little nausea off and on. Drinking tons of water. Can't...
  21. Thread: New here!

    by alhartzler
    Replies
    84
    Views
    19,449

    Thanks for the reassurance on my posting. I...

    Thanks for the reassurance on my posting. I appreciate so much knowing that I am not alone in all my thoughts, doubts, frustrations, etc. I really thank everyone for sharing their stories. I think...
  22. Thread: New here!

    by alhartzler
    Replies
    84
    Views
    19,449

    Hi Suzanne, I will look into the private...

    Hi Suzanne,
    I will look into the private messages. I am not sure if I received, and am so sorry I have not yet responded if I did! I am seriously thinking about changing my entire way of eating....
  23. Thread: New here!

    by alhartzler
    Replies
    84
    Views
    19,449

    Thanks, I will check into the book on prednisone....

    Thanks, I will check into the book on prednisone. Hadn't really even thought of looking for a book on prednisone?! But what a great idea. Especially since it looks like I'll be on it for a while....
  24. Thread: New here!

    by alhartzler
    Replies
    84
    Views
    19,449

    Thanks Marta, I hope this puts me into remission...

    Thanks Marta,
    I hope this puts me into remission quickly. And, after I write stuff, I think about how silly it sometimes sounds. Like bad timing. There is NEVER any GOOD timing with a disease such...
  25. Thread: New here!

    by alhartzler
    Replies
    84
    Views
    19,449

    :rolleyes1: Wow, and I thought 3 kids was...

    :rolleyes1:

    Wow, and I thought 3 kids was alot! Good for you on staying healthy and active! Yes, I will play it by ear for now on making a decision on work. Thanks for the info on water and your...
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