For me it will be 10 years in December. This forum was a great help to me in the early years, it was a great place to compare problems with what other people had. I have fully recoverd now. I still...
Type: Posts; User: Randy
For me it will be 10 years in December. This forum was a great help to me in the early years, it was a great place to compare problems with what other people had. I have fully recoverd now. I still...
Got my 4th dose of Moderna on April 21, (third dose on October 2021). My only side effect is a sore arm and a head ache the next day. The only medication i take is 50 mg of Azathioprine. Have not had...
I had surgery in June, on a Thursday and was back to work on Monday. It's a 15 min procedure. I had to take 3 different eye drops to prevent infection and there was no problem with infection, or any...
I believe in the theory of a hereditary gene but something else has to trigger the disease. My maternal Grandfather died in 1939 of an undetermined disease. I read one report where the doctors said...
I have been taking azathioprine for 6 years (100mg a day) My Rheumatologist says I'll be on it forever. I get urine tests done once a month and a urine cytology once a year. ( not sure what the...
They did the camera scope into my stomach too. They had to put me to sleep though. I gaged on it so badly that was the only way they could get it to go down. What I find amazing is that if they had...
The pill is about the size of a large vitamin pill. It was easy to swallow and tasteless. I had to wear a satchel with a sensor in it. It pics up the images and at the end of the day they load the...
My teeth tend to ache a lot. I thought it was just old age until reading this. Thinking back it started after I developed Wegner's. It is especially bad after I get a filling done. The nerves seem to...
Just thought I'd give everyone an update on my bleed episode. I went to see the GI specialist last week, He went on holidays for three weeks after the camera pill procedure so wasn't able to see him...
yes, I remember the sinus one too, it was ugly looking.
I have the same problems, especially restaurant food.
I don't think I want to see the pictures either.
Hi All: I've been out of commission for a while. I woke up one morning to go to work and noticed blood in my stool. Fearing the worst I rushed off to emergency. Internal bleeding was a big problem...
I took didrocal for 3 years and it did help increase bone density. I stopped after that as my dr. told me that after 3years it can cause more harm than good. I've been taking calcium and vitamin C...
I have been in remission for 6 years and still take azathioprine. My Doctor also recommends that I never go off it. I had a very aggressive, fast moving form of GPA, the doctors had a very difficult...
I remember having a hard time swallowing but I could eat and drink without much problem so you sound much worse than I was. It sounds like swelling in the throat. I would practice letters that I had...
I'm someone who considers himself lucky whey I get 3 or 4 hrs of consecutive sleep in an evening. Can't imagine sleeping for 24hrs.
I went to the optometrist about 18 months ago for blurry vision. Macular degeneration runs in my family and I was afraid that might be my problem. Turns out I had a hole in the Macula of my left eye....
I have a partially paralyzed left vocal cord.I had a lot of trouble speaking in the beginning. The ENT gave me vocal exercises to do but after a year (2010) told me my voice was probably as good as...
I was 57 when diagnosed and have been in remission for 5 years. It may be different for older people but I was told it always comes back. It may take 25 years but at some point it will reappear.
I agree with all the comments. I went back part time,4 hours a day and slowly worked up to a full day. The letter from the doctor is a very good idea. I don't know what your work environment is like...
I, for one am not offended, I know Phil's faith is what kept him going for a long time.
Welcome to our forum. I was diagnosed at 58 and like you feel I was lucky to have so many good years before this condition hit me. There are many people here in there 20,s and 30's. It took a long...
I've been off the site for a while and just heard about this. Hang in there Phil, we are all praying for you. Stay positive, we need you back to dispense your great advise.
I had surgery recently to repair a hole in the Macula of one of my eyes. All the doctors assured me that there would be no problem with this and there wasn't. If an operation like that is safe I...