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  1. Replies
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    Vasculitis Symposium

    Who is going to the Vasculitis Symposium in Minnesota? Who has been to one?
  2. Thread: Went to duke

    by Masha
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    Re: Went to duke

    Thanks Keith. Like you, my goal is to be drug free someday. Time will tell. Duke is great! If it wasn’t for meeting you on this site, I might never have thought of it. I am seeing a light in my...
  3. Thread: Went to duke

    by Masha
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    Re: Went to duke

    Thanks Alysia. I knew he was a Nazi. The article you gave me helped me understand the timeline. Sadly, the US brought many of their scientists here to pick their brain after WWII. We must never...
  4. Thread: Went to duke

    by Masha
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    Re: Went to duke

    Yes, I am to start on Bactrim. If I can tolerate it, then I can begin the slow decrease in prednisone. I know others on this site are on it. Can’t remember who. One of the things the literature...
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    Re: Hello from another new member

    Welcome Tricia. This is a marvelous site. Some of the people here have really had a rough go of it. They are more than willing to share their experiences. What I have learned here is worth gold. ...
  6. Thread: Went to duke

    by Masha
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    Went to duke

    Hey Everyone,
    I havenít posted much recently because I was making some changes in my treatment.
    Right now I am one happy camper. They say you donít know what you have been missing until you found...
  7. Thread: Transplant

    by Masha
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    Re: Transplant

    Normal! Yippee! Yippee! Yippie!
  8. Thread: Transplant

    by Masha
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    19,195

    Re: Transplant

    Now it seems that we have to rely on what got you this far, prayer and positive thinking.
    Masha
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    Re: Happy Birthdays Thread

    mshb, eat cake, fly balloons and do a happy dance! Happy Birthday and many more.
    Masha
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    Re: Happy Birthdays Thread

    Happy Birthday to me2! Celebrate and be well. All the best.
  11. Thread: Transplant

    by Masha
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    Re: Transplant

    Please everybody don’t jump all over me. But I am wondering, Pete, if it would be safe for you to increase your oral prednisone until you talk to a doctor. Boy, Keith is right on! Even our grocery...
  12. Thread: Transplant

    by Masha
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    Re: Transplant

    Sounds all good. When we didn’t hear from you for a day, I was ready to put an all out alert in search of our hero. Use keep the prayers coming your way.
    Masha
  13. Thread: Transplant

    by Masha
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    Re: Transplant

    You are definitely giving everything your best shot. I wish I could say and do more than to tell you my husband and I keep you close to our hearts and in our prayers.
    Masha
  14. Thread: Transplant

    by Masha
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    Re: Transplant

    Oh Gilders,
    I ditto what Pete and Alysia said. One day or one hour at a time. My prayers continue.
    Masha
  15. Thread: Transplant

    by Masha
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    19,195

    Re: Transplant

    Pete,
    We are just so glad to hear from you. When you are feeling 100% then we all want to hear about it. Until then your number one job is to get healthy. I am not surprised you are weak. So...
  16. Thread: Transplant

    by Masha
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    Re: Transplant

    I know it is hard, but stay strong and tell that infection to take a hike. You’ve got things to do and places to be. Prayers continue.
  17. Thread: Transplant

    by Masha
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    Re: Transplant

    Oh, thank you so much for the update. Like everyone else, I have been keeping you and your dad in my prayers. Bet your wife is breathing easier too. Thoughts and prayers continue.
    Masha
  18. Thread: Insomnia?

    by Masha
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    Re: Insomnia?

    Arleta,
    I think what you are experiencing is common with people in the silver generation. My insomnia is caused by the prednisone. I once received some advice (this was pre prednisone). When you...
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    Re: Advise on migrating to Australia

    drz,
    A lot of people are unaware of what you just said. My husband just explained to me that if a person paid only a limited amount or no amount at all into Social Security, they will not qualify...
  20. Thread: Transplant

    by Masha
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    Re: Transplant

    I am with Alysia on this. Prayers across the ocean for one of our own and his wonderful dad.:flapper:
  21. Thread: Transplant

    by Masha
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    19,195

    Re: Transplant

    Gilders,
    From my crazy point of view everything you are doing is normal. I would be doing the same thing. Just remember they are going in to fix you.
    Yes, we do not say everything to loved ones...
  22. Thread: Transplant

    by Masha
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    204
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    19,195

    Re: Transplant

    Hi Gilders,
    Are you still set for March 19?
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    Re: Any virtual workout buddies out there?

    How did your visit to CC go?
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    Re: My First Rituxan Infusion

    I get my infusion that same day. Remember to drink plenty of water for a few days before. It helps the needle to go in easier. Also, have a healthy breakfast. If they give you Prednisone in your...
  25. Thread: Big Thank You

    by Masha
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    Big Thank You

    Big thanks to Pete and Keith. I sent a private message to each of them asking a question and heard back from both immediately. Keith took the time to give me great detailed information. I read the...
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