Search:

Type: Posts; User: Susan55

Page 1 of 4 1 2 3 4

Search: Search took 0.00 seconds.

  1. Replies
    88
    Views
    16,907

    Re: Vancouver, BC, Canada?

    Send you an private email :)
  2. Replies
    88
    Views
    16,907

    Re: Vancouver, BC, Canada?

    Hello
    Just got back from seeing the rheumy is surrey and she is NOT happy I saw Dr. Dehgan in Vancouver. :( she told me not to see her anymore and to stay with Dr. Dehgan as too many doctor's now...
  3. Replies
    88
    Views
    16,907

    Re: Vancouver, BC, Canada?

    Hi Lisa, Happy New Year to you and everyone else here on the site. I'm been out of touch for a while just trying to deal with dr's etc. I am still looking for a support group here in the...
  4. Thread: Pred Uglies

    by Susan55
    Replies
    58
    Views
    10,773

    Re: Pred Uglies

    Hi Ed

    Not sure if your asking me or Martha :)
  5. Thread: Pred Uglies

    by Susan55
    Replies
    58
    Views
    10,773

    Re: Pred Uglies

    Love this poster you made ...I keep looking at it as my face is not getting puffy and the weight is coming on ..but hey nothing I can do but go with the flow.
  6. Thread: Pred Uglies

    by Susan55
    Replies
    58
    Views
    10,773

    Re: Pred Uglies

    Hey Marta


    So happy to see your out having fun and enjoying life ! I've been to a place here in Surrey where you can see movies under the stars and it was fantastic and so much fun. I am so...
  7. Replies
    34
    Views
    3,387

    Re: Off to the Neurologist

    Hi Jaha
    I am reading this post OMG I have someone who actually had/has what I am experiencing for 3 yrs now. I get pain so bad in my head, it quick sharp pains that just shoot all over my head,...
  8. Thread: Any ideas

    by Susan55
    Replies
    11
    Views
    1,359

    Re: Any ideas

    Hi Amy

    I was in the same boat, waiting for blood work, CT Scan and waiting to see the right people to get an answer. For me the waiting game was worse then hearing I had GPA. Now for me it's being...
  9. Thread: Your opinion

    by Susan55
    Replies
    7
    Views
    609

    Re: Your opinion

    Good thank you for clearing that up for me :) hugs
  10. Thread: Your opinion

    by Susan55
    Replies
    7
    Views
    609

    Re: Your opinion

    Hi Pete

    I am wondering if it OK to have a glass a wine once a week? Pharmacy said NOT to drink on MTX at all. Thanksgiving today and I would love nothing more then to enjoy my dinner with a glass...
  11. Replies
    20
    Views
    2,009

    Re: Aiming for drug free remission...

    Wow 20 yrs! that's such good news. There is hope :) I have limited gpa so I am hoping to be like you, let's just get this under control and be able to feel good and more forward once again. My...
  12. Replies
    12
    Views
    1,060

    Re: Just found out yesterday

    Alysia,
  13. Thread: Pred Uglies

    by Susan55
    Replies
    58
    Views
    10,773

    Re: Pred Uglies

    Hi Alysia
    I'm just wondering if I should increase the meds or wait until I go to the the lab (tomorrow) the Dr. wanted to see if med's were working or not. Not sure if it would show up in blood test...
  14. Thread: Pred Uglies

    by Susan55
    Replies
    58
    Views
    10,773

    Hi Alysia Love the pic you posted...yes that...

    Hi Alysia

    Love the pic you posted...yes that feels like us weggies for sure and your right, just walk away from people and their comments. I understand some are just wanting to help, but when...
  15. Thread: Pred Uglies

    by Susan55
    Replies
    58
    Views
    10,773

    Hi Marta Wow, I can't begin to imagine being...

    Hi Marta

    Wow, I can't begin to imagine being on such a high dose and hope and pray I don't have to go there one day. When I was just taking 50mg my head and thoughts were not clear in anyway. I...
  16. Thread: Pred Uglies

    by Susan55
    Replies
    58
    Views
    10,773

    Hi Marta I totally agree with you and I've been...

    Hi Marta
    I totally agree with you and I've been thinking to my self wow she is dropping the dose way to quickly. When I would take it for COPD, it would go down by 5mg etc etc.
    And I have to wait...
  17. Replies
    33
    Views
    3,596

    :( oh wow, I am so sorry you had to hear this...

    :( oh wow, I am so sorry you had to hear this from her. I find it even harder when it's family. but we just stay strong and stand stall
  18. Hi Marta Yes, I got your msg, thanks ;) I...

    Hi Marta
    Yes, I got your msg, thanks ;)

    I totally agree "Power is Knowledge". I will be calling you at the end of the week if that is OK? My son comes tomorrow from San Fran I am so excited to...
  19. Thread: Pred Uglies

    by Susan55
    Replies
    58
    Views
    10,773

    I'm reading all the post here to learn about...

    I'm reading all the post here to learn about weaning. Am I reading it correct, you and other's were taking 100mg a day of steroids? or was this weekly?
    Wow, still so much to learn.
  20. Thread: Pred Uglies

    by Susan55
    Replies
    58
    Views
    10,773

    I am trying to understand how you go down to say...

    I am trying to understand how you go down to say 4mg when the pills come in 5 mg dose? Something I am not understanding or miss reading. I started at 50 mg Sept 12 and down to 30 for the last week...
  21. Thread: Pred Uglies

    by Susan55
    Replies
    58
    Views
    10,773

    I will be grateful to read about your techniques...

    I will be grateful to read about your techniques of weaning pred. I still have no idea how long I will be on them for (never explained to me from Rheumy) started at 50 mg sept 12 and down to 20 mg...
  22. Thread: Pred Uglies

    by Susan55
    Replies
    58
    Views
    10,773

    LOVE IT Marta thank you for sharing this is...

    LOVE IT Marta
    thank you for sharing this is going to help me.
    love your smiles and your so beautiful
  23. Replies
    33
    Views
    3,596

    I just had a friend last night tell me that this...

    I just had a friend last night tell me that this just isn't a real disease and if it was her she wouldn't take chemo med's. Well between the side effects of the steroids and my own anger I was not...
  24. Replies
    178
    Views
    56,985

    Sticky: So, how does one know if it has gone to the head?...

    So, how does one know if it has gone to the head? The reason I am asking is for the past year or so I get sharp pain in my head (not headaches) different just sudden sharp pain. I had brain aneurysm...
  25. How did the interview go? I've heard it's hard...

    How did the interview go? I've heard it's hard to get a Nexus pass from so many people, so your one of the lucky one's :) When I first moved to Canada from California in 78 I loved going to Pt...
Results 1 to 25 of 83
Page 1 of 4 1 2 3 4