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I was hospitalized in October 2010 with "pneumonia" after going though all the classic sinus misteps, surgery and a week in the HP a month earlier to treat a "sinus infection" that would not go away....

I have been taking 20 mg of prednisone for three months. My Rheumatologist and Specialist are starting a prednisone taper to 15 mg for three weeks, 10 mg for three weeks, 7.5 mg for three weeks, and...

Hello fellow Weggies. I've been a Weggie one year today. I was taken off CellCept a month ago today and put on Methotrexate. I could not tollerate the CellCept because of the GI problems it caused. ...

I've been a Weggie for one year, today. I was diagnosed 10-23-09. The one thing I learned over this past year is you must find the right doctors in order to survive & thrive. I spent the first six...

I have made great strides in the last month as far as my Wegs goes. I came of Cytoxan July 14, 2010 after I was hospitalized due to the crippling effects the Cytoxan had on my immune system. I...

my kidney function is now normal below (1.3) and at one point my creatinine was .9 and it has stayed below(1.3). He is not basing it solely on the inflamatory numbers. All of the numbers from my...

Jack,

Is myfortic the generic for Cellcept? If so I will be on myfortic instead of Cellcept as my insurance pays for generics when you get scripts filled. Thanks for your info. Tim

I used to take Bactrim on MWF, but my specialist changed it to seven days a week when I was discharged from the HP July 21. My white count was .8 when I entered the HP & it was back to normal at...

I am two infusions into my Rituxan treatment. The first was July 19 & the second was July 30. Number three is August 10 & number four is August 17. I was on 60 mg of preds last week and now I am on...

My main problem with Cytoxan was the groggy/fatigued feeling all the time. My dad told me the night I was released from the hospital this most recent time (July 21) that it was the first time in a...

My wife has psoriatic arthritis & she is on methotrexate. She takes her dose once a week orally. She was doing injections but like taking the pills better and switched back. She takes folic acid to...

LOL, G Rebel :) I am just glad that I am off the Cytoxan and have found the right doctors to care for me. I dread the Cellcept Diarreaha. I am presently on prescription strenght Prevacid for my...

Stephen Capizzi, MD is listed on the Vasculitis Foundation Website as a consultant and knows alot about WG. He manages my care and is in Nashville, TN.

I have just begun my first Rituxan treatment and I was able to tollerate Rituxan with no reactions. I have three more infusions to go & then I am going to be placed on Cellcept as my maintenance...

I was not diabetic until I began taking solumedrol in the HP when diagnosed with WG and I have been since then while I have been on the prednisone. My blood glucose stays fairly stable ann last...

I am now off Cytoxan. I was diagnosed October 23, 2009 with WG & had my first infusion of Cytoxan via IV on October 24, 2009. I began taking 200 mg a day by mouth November 23, 2009. I was on 200 mg...

I am sorry for your loss, God Bless you at this time & my wife & i will pray for you.

Dr Stephen Capizzi, MD is a Vasculitis Foundation Consultant and Wegener's specialist in Nashville, TN. The phone number is 615-284-5098 & the address is:

Mid State Pulmonary Associates
300...

Attention to any Weggies from Mississippi, Northwest Alabama, or West Tennessee. Get in touch with me at the e-mail address below so we can begin a discussion about a tri-state vasculitis foundation...

I went to see my VF specialist Monday June 07 & after an analysis of my bloodwork he determined that instead of remission like he thought in April that I am "moving toward remission". He compared my...

I cannot recall his reasoning but thanks. The Neurontin is helping the foot pain.

Sangye,
The lowest dose of prednisone that I have been on was 30 mg. It had to be upped when my shingles developed because my creatinine spiked to (2.3) May 25. My creatinine was (1.4) June 2. I...

I had an echo March 30 & another is schedule for July 30. My heart increased 10 percent in size from my hospital stay. I am taking aldectone, coreg, and lasix for my heart. The cardiologist...

I was diagnosed October 23, 2009 after battling a two month "sinus infection". I was in the hospital with my "sinus infection" the first week of September 2009 & had clear lung x-rays. By October...

Sangye,

I have a VF doctor on my case. The "nutty stuff" you are saying was told to me in December of 2009. Since that time I have contacted a speacialist through VF which is who has stated I...