Search:

Well another round of test but hopefully finding some answers. Had whats called ENG, Ice and warm water in ears while following lights with eyes only, really weird sensation. Showed abnormality that...

My last SED rate was down to 56 additional test confirmed Iron deficient anemia. Am on iron supplement 3x daily. I also take folic acid as the Sulfasaylazine depletes this. Having a second sleep...

Well since November 2015 with what started as chronic diarreha that only lasted about 2 weeks but put through a battery of test blood, CT scan, upper and lower GI scope, MRI, ENG, sleep study and...

Had a cancellation so got into Vasculitis Specialist at Kansas U Medical center sooner. He studied at Cleveland Clinic which is where they wanted to send me originally but KU is about 600 miles...

I told them to call earlier if there's a cancellation. Surg. feels it is a systemic inflammation due to Autoimmune but also suggested a Genetic work up.

I'm 100 miles from KU Medical Center so I told them at least a 4 hour notice would be nice, 3 would probably be minimum.

Have an app. Feb 9th with a Vasculitis specialist. The Doctor that did my upper and lower GI saw inflammation although lab said it was suspect for Ulcerative Colitis. The Dr. thinks that I have a...

I have multiple what they call Lypomas. I have had a couple removed they always check neg. for cancer. Don't know if they could be related to Wegs. not many of the Drs. around here are familiar with...

Thank you for encouraging words. Yes it will be with Dr Springer hope to get some answers.

Well finally got a call. Have an app. on Feb. 9th with a Vasculitis Specialist at KU Medical Center. A lot closer than Cleveland and this Doctor studied at the Cleveland Clinic. Hope to get in sooner...

Had a follow up today with Doctor that did my Upper and Lower GI results said Upper was fine but lower showed suspect of Ulcerative Colitis. Talked with him about this plus Vertigo and back twinges...

Will find out more on 12/29/15 have app. with Dr. that did upper and lower said biopsies shwed no Cancer but still needed to talk with me. Back on 10 days of Prednisone. Thanks for concern.

Here I sit again confused. Since Nov. 15 2015 have had chronic Diarehha. Went to family DR. blood test came back with a Sed. Rate of 86 and CRP of 2.7 said there was infection and inflamation but...

Mainly upper airway feels narrowed, my MD treated with one 6 day predisone regiment along with albuterol inhaler. My blood pressure was also averaging 175/95 with my lower number climbing as high as...

Oh well another positive ANCA but no specific target to biopsy. Sent to cardiologist for chest pain and short of air. Echo showed a leaking heart valve. Is Wegener's there just waiting? Confused...

Been seeing my family Dr. couldn't see him so saw his assistant for upper airway congestion and short of air and high blood pressure. Said upper airways were tight but lower fields were clear didn't...

Hey Angela, I sweat terribly though I'm not on any steroids right now. I can be outside in the cold with just a T Shirt and sweat with the least bit of exertion. The Drs. can't tell me why. My blood...

I can relate to what you're saying. My Rheumy won't give me Meds with nothing to Biopsy. But I also sweat to the point of embarrassment. I am hoping a Wegs. specialist in Kansas City may be able to...

Hey DD just got latest blood work and once again I have a positive ANCA but other than the profuse sweating show no other signs so right now I'm on no Meds. Dr said with nothing to Biopsy does not...

:unsure: Again I find myself waiting for results a another round of blood test. Sinus problem has gotten better, still nothing to biopsy. Biggest problem right now is that I sweat very easily and...

Going to family MD next week and insist on upper airway CT. Thanks have a good weekend.

Thanks I'm presently seeing Rheumy in Des Moines IA don't know if he specializes in Weg. Referred there by family Dr. after 1st pos. ANCA test.

Thanks. I'm presently seeing a Rheumy in Des Moines IA not sure if he specializes in Weg. Family Dr. did referral after 1sr pos Anca.

Still confused. Got latest labs back 2 of my markers show an inflamation, Sed rate slightly elevated, they said my ANCA was neg. but they sent it back out to retest. Nasal passages burning but no...

First symptoms were scleoritis (forgive the spelling) in my right eye. The eye Dr. saw something he didn't like and ordered a series of blood test one of which was the ANCA that came back positive....