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Hi Joanne

Sorry you are going thru all this. I have had similar symptoms with my throat......trouble swallowing, choking on food, feeling like something was stuck back there. It took referrals to...

Sorry to hear you are going through all this. I haven't been on the forum much lately and am so sorry to hear about all this. Will definitely be praying for you.

Hugs to to you and Alysia
...

Hi Nikki

I've never felt like that other than tongue numbness when I had a bad migraine. Sounds like there are too many symptoms to ignore though. Please please please get it checked out.

Hope...

Amazing News!! So happy for you!

Jennie

Hi Kristina

Welcome to the Forum. Everyone here is so helpful and caring. I hope you had an informative appointment with your Rheumatologist and got a few questions answered. How are your kids...

My Rheumatologist manages my meds. I also see an Otolaryngologist who updates the Rheumy on my symptoms. Recently as a result of an infection over the holidays, I was also seeing an Infectious...

Great article Carrie! Thank you for sharing your story this way, hopefully it will raise awareness and understanding in your community and elsewhere.

Jennie

Hi BookNut and Welcome

I too have been diagnosed with what my rheumy calls "limited" or "not full blown" wegeners. I have some similar symptoms to you in that I had changes to my voice and...

Good point drz, and i would not expect acquaintances or friends I don't see often to remember. However, I expect more from immediate family and close friends.

Hi Everyone

One of my pet peeves is when someone asks "What's the name of that thing you have?" Especially when I've told them a number of times already. Not many people know that I have this so...

Hope you start to feel better soon!

Wishing you a speedy recovery,
Jennie

Hi All

I just wanted to ask if anyone else has any kidney issues that are apparently unrelated to their Wegener's diagnosis. I once again have a good size kidney stone in my right kidney and a...

Just voted, Good Luck Seren!

Hi Everyone

I think I'm stressed out thinking of ways to cope with stress:rolleyes1:. Love all the ideas so far, I'd like to add crafting to the list...I knit in my spare time (mostly in my...

Hi Rachel and welcome to the forum. The members here are so helpful, kind, understanding, knowledgeable. I continue to be so grateful to everyone here for their comments and support. Good luck with...

That's wonderful neww drz, best wishes for a speedy recovery.:thumbsup:

Thanks drz and Phil. I took both of your advice, went and got bloodwork done on Friday morning. When I got home though I realized no one would see the results until today so off I went to emergency....

Hello Everyone

I am wondering if you could give me some advise...... I have been on Imuran for about a month, up to 150mg daily. Yesterday I started to get really achy, hot, cold, headache and...

Hello

I too had watery eyes while on MTX. I was on it for about 3-4 months and just gave up on wearing any eye makeup as i would be constantly wiping it off and getting lovely black smears under...

Thanks everyone for all your input. It certainly gave me a lot to think about and helped me come up with questions for my Rheumatologist at my appointment yesterday. We agreed that the Methotrexate...

Hi Everyone

I am just back from another disappointing appointment with my ENT. He used the camera again to check on my throat (supraepiglottis and vocal chord region) and there has been no change...

So glad to hear the GB surgery went well and you are recovering at home.

Take care,
Jennie

Hi Everyone

Just a quick update. I saw my Rheumatologist yesterday and he now seems to be sure that I have "limited wegeners" as my throat is my only major issue. I am assuming that having...

Hi KathyB

I had mine out about 12 years ago. The surgery was laproscopic and done in the moring. I was home that same afternoon. However, this was before I had any symptoms of WG which I think...

Hi Everyone

Just a quick update. I did see my ENT about a week ago. He used the little camera to check my throat again and said there was only a slight difference since the last checkup. I was...