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For what is it worth I have had two severe Wegs episodes where I had to go through full on Cytoxan for two years for each episode (1992 & 2011) and my ANCA is never positive. The only way my labs...

Just ran across this article, interesting.

Cramps: A few months into my sugar-free life I realized that I hadn't had any leg or foot cramps since the diet began. Serious cramping had been a...

Gilders - Interesting! Thanks for sharing. My first go round was around yours, 1992.

Gilders - What drug did they use for you? Azathoprine? Why did they not use CTX or RTX? Seems that you would have been a lock in for a heavy hitter. And if you had gotten one of those I wonder if you...

Very interesting, have not heard this before but it totally fits for me. I got sick with major vasculitus in my legs and the dermatologist that saw me diagnosed me in one visit, I also had severe...

I have saddle nose, not to bad yet, but I do have two holes in my septum. Going in Wednesday to get a stint put in to help me breathe as my nose is starting to fall apart. Nose surgery is in my...

Low Alkaline Phosphatase | New Health Guide

I actually just got the Alcat food testing done, and curious to see if it helps my neuropathy/overall health. Been trying to figure out what is going on because just going gluten free did not help....

Interesting article on Paleo and blood pressure... 6 Ways To Lower Blood Pressure By Changing Your Diet

One way to check your gut is to see what your ALP and B12 numbers are, if they are both low then it is a sign that your gut has issues and that you are not absorbing foods.

Alcat is very pricey unfortunately, but I did the 150 foods and am glad that I did, which was about $500. There are random things that I react to that I am glad that they came up, and they were part...

For fatigue make sure to check your ALP and b12 levels, if they are low then one factor could be that you are not absorbing nutrients. I have found that my body does not absorb food and that is...

Regarding CTX... I had wegs 20 years ago when there was no RTX, so we used CTX. In 2010 I got a flare again, got RTX a few months later and initially it helped greatly but within a few months it just...

Interesting thread. My nose is starting to fall, this week I am getting some stint put in to help with breathing, my doc said that would work for now. He mentioned that I will also have to have my...

I have done endurance events and for those we use the below salt tabs, they help with cramping, If I were having cramping issues I would take two of these a day. Keep in mind that drinking water is...

Atypical Celiac Disease: Could You Be Missing This Common Problem? | Consultant360

Folks that have autoimmune disease are celiac at a higher percentage than normal, but it can be very hard to...

Rose - I am learning more and more about being "intolerant" of foods. I have no allergies per say, but now that I am GF if I eat gluten I get very sick, faint and lightheaded which can last days. For...

Guys please realize that while we might like wheat/dairy these cause inflammation, so it is basically to choose between having wegeners or having bread. I know that sounds extreme, but reducing...

One other comment. I also tried the blood type diet for awhile, while also trying to avoid dairy/grains. It finally occurred to me that my ultimate goal was to put my autoimmune system in check....

LisaT - For me I just stick to the no grains/dairy rule, mostly, because of the auto-immune response. After that everything is ok (in my book), even if Paleo says no. Basically I am doing this to...

Two comments:

A. What we are comfortable with does not really matter much. I am very much a grain based person, but grains are proven to increase your immune system activity (especially gluten) so...

LisaT - Paleo has meat, but others say not to eat it. Just depends on who you listen to. Really have to find what works for your body because one thing will tell you no red meat and one will tell you...

Guys, I have had a pretty easy time (after 2 years of treatment) of getting into remission. BUT I did it the hard way. The first time I was put on CTX at a high dose, lost my hair, chemo exhaustion...

Andrew hate to break it to you, but you are a saint :) I really think that once you get enough in the bank to pay the next few years or so that the extra should go to what you have paid in the past....

All,

I just want to shout this, ya'll have to check out Paleo. It is a no brainer for folks like us with auto-immune issues. Eating dairy and grains just aggravates the immune system. You really...