Sounds all so similar. I just wanted to come here to wish you guys well and that this can be beat. I am 27 now, was diagnosed at 22. First two years were rough. After my final round of Rituxan it...
Type: Posts; User: carriej22
Sounds all so similar. I just wanted to come here to wish you guys well and that this can be beat. I am 27 now, was diagnosed at 22. First two years were rough. After my final round of Rituxan it...
Thanks so much guys :D
Thanks guys! It feels so long ago but at the same time it doesn't :)
It's nice to look more like myself again. When I smile, my cheeks are definitely a bit rounder than they used to be, but most...
Hi Folks,
It has been almost 4 years since diagnosis. I finally feel confident enough about my health that I feel like I'm at a point where I can say that I think I've won, and I hope to keep on...
Thanks guys! I also remember being super sick in 2012. I do not want to be that sick ever again. It's like a whole year of my life is like a black spot. I don't have a lot of memory from that year at...
Hi!
Yes, I am still here!
I pop back and forth sometimes, and some of you have me on Facebook so you see me from time to time :)
Just wanted to update you guys healthwise. I have done pretty...
I had RTX only once (4 infusions) in May/June of 2012. I have not had any since. Initially, my doc wanted to put me on a maintenance program but due to my work I asked if we could wait it out.
I...
I was 22 when I received diagnosis... Within a few months I was back to work, and now I am pretty much living normally. I mean, there isn't a cure so you always have to deal with some aspects but...
Hi Guys,
I feel like at one point and time there was a drug I was on (can't recall which) that my doc warned me of Achilles tendon injury. I have been off most drugs (except still taking imuran,...
We have atleast that. I'm only about 8 hours from Boston. I'm along the coast so we always get hit hard. There are some places in my backyard that are close to 10 feet.
The financial situation is...
Hi folks! Yes I am still around!
Hope you all are feeling well.
I have just been doing my thing. Monthly labs and the daily grind of work, sleep, repeat.
I have found out I have low...
Thanks guys. I guess I will just wait and see what happens with the testing.
Oh don't get me wrong, I eat meat... Just not very much fish (not a fan) and red meat because here, beef is very expensive. We eat a lot of chicken and that sort of thing.
I do have a second...
They did not. She added a bunch of stuff onto my bloodwork in a few weeks time, and in the mean time has me on a very protein oriented diet... Which normally isn't something I eat a lot of. Red...
Well, this is a new one for me.
I went in yesterday and discovered I have low hemoglobin, pale cells, and she said something about iron but I can't for the life of me remember.
She has put me...
I am pretty good stamina wise right now. I am currently working two jobs. One is a desk job but the other I'm on my feet. As long as things don't deteriorate too much I should be running around the...
I was planning on having the Pharmacy do me up my medication for the week or possibly 10 days to play it safe. They do it up in little bubbles. A lot of people have it done for trips. I will have to...
Hi Guys,
While I have never had much of a desire to travel since being diagnosed with Wegeners a few years ago, one of my friends is getting married down south. Not exactly sure where yet,...
As some of you noticed I haven't really properly accepted Phils death yet. Phil and I talked very often, instantly bonding over being Canadians a few years ago... I am so sad. I was having such a...
I didn't read every post, but my toes turned black and my hands still go numb and painful. They told me that the hand thing is neuropathy and luckily as soon as I received treatment my toes fixed...
I have been crying all day about something else, and I couldn't understand why it was affecting me so badly. My husband came home, and told me to stop crying about the silly thing I was crying about....
Phil I hope you feel better soon. You always seem to have such a hard time. I am glad that you have Alysia there with you though. Keep us posted and we are all thinking about you.
Fifty shades of grey is a little raunchy even for me LOL. I wouldn't say my writing is quite as explicit as that.
It's funny... Because I am not a huge fan of reading those type of books, but I...
You can for sure do your own writing now, it's a blessing and a curse. Everyone can write, which means there are endless books; which means a lot of competition! A great book can go undiscovered.
...
Yes Ann, there has been no move to take me off Imuran. I bean Imuran in October of 2012. Will probably be on it for... Ever? I don't know. There has never been talk of removing me from Imuran.