Yes!
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Type: Posts; User: Vansyckle73
Yes!
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I'm newly in remission but don't want to rock the boat.
Thanks, I will ask them again since it will require more than just a filling like I had previously thought.
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Do Wegener patients need special dentists? I posted on an online forum and am getting mixed responses.
I went to the dentist since I had a filling cone lose and I wanted to get ahead of it. Turns...
Welcome to the group. I was on Cytoxan for 3 months. Moved to Rituxan about 2 weeks ago. Wegs affected my sinus, eye, and lungs.
My thoughts go out to you and your family. It is hard to deal...
Had my first Rituxan infusion yesterday. While I was looked up I obviously was knocked out by the Benadryl but I had a nightmare I was there.
The same thing happened tonight. I woke up a few mins...
Welcome!
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So yours is on your left side too. I thought of that but would have expected a fever. Thanks for your feedback.
I'm going to call the doc today. I can't explain the chills but the pain feels more...
I clean it after every use and do a special cleaning every week and I do use distilled water with neilmed packets. The ENT saw a huge improvement in my sinuses since the machine.
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I try to have a very structured life. Eat, sleep, rest, at the same time every day. It keeps me from over doing it.
But for the past 3 days I have woke up in extreme pain in my hips that goes to...
It ended up in your cheek and jaw? What were those symptoms like?
I hope to remain in the area but I do need to get better. No plan to leave yet, but hopefully we can still make progress and...
I will keep that in mind. My current doc is doing that and so far so good. Very pleased so far by the progress.
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Why is the rheumatologist the right one to manage it? Do they do something specifically different than a pulmonary doctor would? Just curious.
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I am on cyclophosphamide and prednisone under the direction of my pulmonary doctor. Next week I am meeting with a rheumatologist to start that relationship.
I am considerably better but far from...
Was diagnosed at the end of August with Wegener's affecting my eyes, nose, lungs, and skin. Was sick for nearly a year and unfortunately went through 3 surgeries and one hospital stay before being...