Hi, I hope it's ok to post this link here.
Cardiff University are launching a research project, and are looking for participants of child baring age to fill in the attached survey (UK only...
Type: Posts; User: gwenllian111
Hi, I hope it's ok to post this link here.
Cardiff University are launching a research project, and are looking for participants of child baring age to fill in the attached survey (UK only...
Random Acts of Kindness by Gwenllian Hill - GoFundMe
I get the sweats even without pred, esp at night. Hope your symptoms settle down soon, stay strong X
Thanks for the reply.... nice to know i'm not alone :blushing:
I didn't know that vasculitis could cause ulcers anywhere...does anyone know why this is?
X
Does anyone suffer with ulcers 'down below' caused by vasculitis/WG?
:predrage:
My ferratin levels are always low, which i'm meant to be on iron for. No known reason for it.
I don't have it, although my septum is deviated. x
Good post.
I have to have a health interview (UK) on friday, to see if I really am 'sick'. I look okay, so goodness knows how this is going to turn out.
I feel so unwell all the time now (i'm...
Hi everyone - anyone gone from having sub glottic stenosis to bronchial stenosis? If so did your symptoms differ slightly? I'm more breathless now talking and I can't clear my phlegm up as easily as...
Hi guys,
I have set up a fundraising page for Phil, to help financially during this difficult time.
The page is here Help support Phil by Gwenllian Hill - GoFundMe
Thanks for reading this...
Hi everyone how's it going?
Have been following most on Facebook...but thought I'd pop on here and ask some advice, as you guys are the experts. :)
I've been in 'remission' for a while now,...
Hey guys
Any updates?
Just thought I would chip in with my sympathises about the 'nasty nurse' scenario, jeez, I've been there!
How are things looking now?
Yeah, i've tried Ritix but I am allergic to it. What are the chances of that happening! :rolleyes1:
X
Hey guys :flapper:
I've been on Immunologlobulin Infusions for a long time now, because my body doesn't make enough antibodies.
Does anyone else have this?
Basically, I was having...
Even if your ANCA neg (which I am too!), it doesn't mean you don't have WG. It's not a definitive marker for dx. X
Honestly, i'm terrified of being put back on pred. Last time I started having psychotic hallucinations, and severe depression (to the point that I wanted to end my life).
:(
At the end of the day, you KNOW your body better than anyone else. It's so hard to be strong with doctors when you feel unwell anyway, it's so hard. :thumbdn:
I find it hard to explain to my...
Hi
I'm writing a book about the care patients receive (regardless of disease). For example, being turned away at ER, doctors being unsympathetic, - or, of course, the complete opposite - have you...
How are you Phil?
Email [email protected] with vasculitis in the subject line, requesting an application form! :thumbsup:
The Discovery Channel are calling for those who have vasculitis, to help them
make a series of programmes. They will pay for any specialist care you need, if you appear on the show.
The company...
I'm okay...good days vs bad days. :)
I have major re constructive surgery on my airway in a few months time. Nervous, but I know it's the right thing to do.
How are you? X
I am a veggie. In fact 'weggie' always reminds me of a 'veggie' (burger). X
Hi everyone!
How are you all?!
Just to let you know that the Airway Stenosis Patients' Association (ASPA) charity is now official and live!
The website is Airway Stenosis Patients...