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  1. Thread: Forum activity

    by Randy
    Replies
    6
    Views
    509

    Re: Forum activity

    For me it will be 10 years in December. This forum was a great help to me in the early years, it was a great place to compare problems with what other people had. I have fully recoverd now. I still...
  2. Thread: Third Vaccine

    by Randy
    Replies
    44
    Views
    4,269

    Re: Third Vaccine

    Got my 4th dose of Moderna on April 21, (third dose on October 2021). My only side effect is a sore arm and a head ache the next day. The only medication i take is 50 mg of Azathioprine. Have not had...
  3. Thread: Cateract surgery

    by Randy
    Replies
    7
    Views
    1,578

    I had surgery in June, on a Thursday and was back...

    I had surgery in June, on a Thursday and was back to work on Monday. It's a 15 min procedure. I had to take 3 different eye drops to prevent infection and there was no problem with infection, or any...
  4. I believe in the theory of a hereditary gene but...

    I believe in the theory of a hereditary gene but something else has to trigger the disease. My maternal Grandfather died in 1939 of an undetermined disease. I read one report where the doctors said...
  5. I have been taking azathioprine for 6 years...

    I have been taking azathioprine for 6 years (100mg a day) My Rheumatologist says I'll be on it forever. I get urine tests done once a month and a urine cytology once a year. ( not sure what the...
  6. Thread: Intestinal Bleed

    by Randy
    Replies
    18
    Views
    2,383

    They did the camera scope into my stomach too....

    They did the camera scope into my stomach too. They had to put me to sleep though. I gaged on it so badly that was the only way they could get it to go down. What I find amazing is that if they had...
  7. Thread: Intestinal Bleed

    by Randy
    Replies
    18
    Views
    2,383

    The pill is about the size of a large vitamin...

    The pill is about the size of a large vitamin pill. It was easy to swallow and tasteless. I had to wear a satchel with a sensor in it. It pics up the images and at the end of the day they load the...
  8. Thread: Tooth Discomfort

    by Randy
    Replies
    9
    Views
    1,293

    My teeth tend to ache a lot. I thought it was...

    My teeth tend to ache a lot. I thought it was just old age until reading this. Thinking back it started after I developed Wegner's. It is especially bad after I get a filling done. The nerves seem to...
  9. Thread: Intestinal Bleed

    by Randy
    Replies
    18
    Views
    2,383

    Just thought I'd give everyone an update on my...

    Just thought I'd give everyone an update on my bleed episode. I went to see the GI specialist last week, He went on holidays for three weeks after the camera pill procedure so wasn't able to see him...
  10. Thread: Intestinal Bleed

    by Randy
    Replies
    18
    Views
    2,383

    yes, I remember the sinus one too, it was ugly...

    yes, I remember the sinus one too, it was ugly looking.
  11. Thread: Intestinal Bleed

    by Randy
    Replies
    18
    Views
    2,383

    I have the same problems, especially restaurant...

    I have the same problems, especially restaurant food.
  12. Thread: Intestinal Bleed

    by Randy
    Replies
    18
    Views
    2,383

    I don't think I want to see the pictures either.

    I don't think I want to see the pictures either.
  13. Thread: Intestinal Bleed

    by Randy
    Replies
    18
    Views
    2,383

    Intestinal Bleed

    Hi All: I've been out of commission for a while. I woke up one morning to go to work and noticed blood in my stool. Fearing the worst I rushed off to emergency. Internal bleeding was a big problem...
  14. Replies
    53
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    6,628

    I took didrocal for 3 years and it did help...

    I took didrocal for 3 years and it did help increase bone density. I stopped after that as my dr. told me that after 3years it can cause more harm than good. I've been taking calcium and vitamin C...
  15. Replies
    10
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    1,579

    I have been in remission for 6 years and still...

    I have been in remission for 6 years and still take azathioprine. My Doctor also recommends that I never go off it. I had a very aggressive, fast moving form of GPA, the doctors had a very difficult...
  16. I remember having a hard time swallowing but I...

    I remember having a hard time swallowing but I could eat and drink without much problem so you sound much worse than I was. It sounds like swelling in the throat. I would practice letters that I had...
  17. Replies
    21
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    4,492

    I'm someone who considers himself lucky whey I...

    I'm someone who considers himself lucky whey I get 3 or 4 hrs of consecutive sleep in an evening. Can't imagine sleeping for 24hrs.
  18. Thread: Eye issues

    by Randy
    Replies
    73
    Views
    9,199

    I went to the optometrist about 18 months ago for...

    I went to the optometrist about 18 months ago for blurry vision. Macular degeneration runs in my family and I was afraid that might be my problem. Turns out I had a hole in the Macula of my left eye....
  19. I have a partially paralyzed left vocal cord.I...

    I have a partially paralyzed left vocal cord.I had a lot of trouble speaking in the beginning. The ENT gave me vocal exercises to do but after a year (2010) told me my voice was probably as good as...
  20. Replies
    7
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    972

    I was 57 when diagnosed and have been in...

    I was 57 when diagnosed and have been in remission for 5 years. It may be different for older people but I was told it always comes back. It may take 25 years but at some point it will reappear.
  21. Replies
    12
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    1,663

    I agree with all the comments. I went back part...

    I agree with all the comments. I went back part time,4 hours a day and slowly worked up to a full day. The letter from the doctor is a very good idea. I don't know what your work environment is like...
  22. Replies
    979
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    421,377

    I, for one am not offended, I know Phil's faith...

    I, for one am not offended, I know Phil's faith is what kept him going for a long time.
  23. Replies
    13
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    2,295

    Welcome to our forum. I was diagnosed at 58 and...

    Welcome to our forum. I was diagnosed at 58 and like you feel I was lucky to have so many good years before this condition hit me. There are many people here in there 20,s and 30's. It took a long...
  24. Replies
    979
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    421,377

    I've been off the site for a while and just heard...

    I've been off the site for a while and just heard about this. Hang in there Phil, we are all praying for you. Stay positive, we need you back to dispense your great advise.
  25. Thread: Lasik treatment

    by Randy
    Replies
    5
    Views
    1,137

    I had surgery recently to repair a hole in the...

    I had surgery recently to repair a hole in the Macula of one of my eyes. All the doctors assured me that there would be no problem with this and there wasn't. If an operation like that is safe I...
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