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Type: Posts; User: Orpheus

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  1. My hands are losing circulation while sleeping

    This just started happening two nights ago, when I woke up my entire left hand was numb and blue and I couldn't move it at all, but after sitting up restoring circulation everything went back to...
  2. Does anyone get these short head colds that last a few hours and go away

    Three times in the last 2 mths I've been getting these head colds that go away in a few hours. I get congested, groggy with a headache that lasts for a few hours then goes away. I'm not really sure...
  3. I'm afraid not and I think the doctor wants me to...

    I'm afraid not and I think the doctor wants me to take both at the same time.

    I just took my first dosage now, 20MG so lets see how this goes.
  4. Had a MRI done last week and my knees are as good...

    Had a MRI done last week and my knees are as good as they are going to get. Doctor said they aren't damaged enough for a knee replacement but there is still necrosis in both. So this last week was...
  5. So much for feeling good, starting methotrexate on Saturday

    So I had a relapse a couple of weeks ago and in the hospital my doctor decided it is time for me to be in methotrexate. Prednisone + Cytotoxin didn't put me in remission last year so I was taken it...
  6. I turned into a huge raging asshole, i can...

    I turned into a huge raging asshole, i can remember berating my mom too tears. She would leave at times or just sit in a croner in silence, TBH it makes me very sad thinking about it.

    If you want...
  7. im on my tablet and I can't edit my own thread...

    im on my tablet and I can't edit my own thread but i did find people who were on the same dose of methyl prednisone so I am pretty sure that's what I was on
  8. I really thought I was given 1200mg but i. must...

    I really thought I was given 1200mg but i. must have miss heard. I had massive blood loss. (he just drained about 750ml of blood from my lungs the night before) and my kidneys were failing. He may...
  9. Wild wild mood swings, i had no control and got...

    Wild wild mood swings, i had no control and got very angry at the littleist annoyences. My mom had to leave the room.
  10. whats ghe highest dosage of prednisone you've been on?

    I made a post on the general chat and mentioned i was "only" on 100mg of prednisone. To me that is a very small dose, when i was first admitted a year ago they had me on 1250mg of IV prednisone for 5...
  11. Ya sorry ive been on higher dosage, the doctor...

    Ya sorry ive been on higher dosage, the doctor was considering a higher dosage then 100mg but since I had a pretty bad reaction to it last time (i got avascular necrosis in both my knees and ive been...
  12. About 30min after I made this thread I started to...

    About 30min after I made this thread I started to get nasal issues. I didn't want to at first but I have my Rheumatologist cellphone number, when the nose systems started I texted him. He told me to...
  13. Is it possible to relapse without nose issues?

    I have tried to get a hold of all my doctor's without success.

    For the last 2-3 days I'v been extremely tired with severe headaches (i very rarely get headaches in general and the last time i did...
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    No, but what I like and don't like has changed (I...

    No, but what I like and don't like has changed (I think because of the Kemo drugs I am on). Water has a very strong metallic taste to it, I don't like chocolate anymore and it appears that I like...
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    DVT is Deep Vein Thrombosis aka blood clot. I...

    DVT is Deep Vein Thrombosis aka blood clot.

    I do wash my hands but I think I need to be more vigilant when it comes to that.
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    Thanks for all the support, sorry I haven't...

    Thanks for all the support, sorry I haven't responded. I am fighting an infection and had to spend a night in hospital. I am recovering now but I am still pretty weak.

    As I've always said I am...
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    Before this I was a very healthy person, the only...

    Before this I was a very healthy person, the only time I would go to hospital were from physical injuries from playing Football or Hockey. Actually, that is not true. Back in Nov 2014 I had to go to...
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    It feels nice to share:

    Been lurking on these forums since Mayish (I signed up while I was still in the hospital) and been reading a lot of stories between now and then. I guess it is time to share my story to those who are...
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