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  1. Update: First Round of Rituxan tomorrow

    drz Yes, precisely why I chose the place. Everyone was very explicit about one big thing…once the drip started, if I felt different in any way then when I walked in, I needed to tell them. I was...
  2. Re: Update: First Round of Rituxan tomorrow

    Update: it was a long non event for the most part. Had a slight throat closing reaction 30 mins in or so and that was addressed with Benadryl. After waiting for that to chill on out, the rest of it...
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    Re: Greetings Everyone!

    Welcome jrslim !
    It’s a weird land of things when you find out you have Granulomatosis with Polyangitis or Wegeners…. Whichever you chose to go by. It can feel overwhelming for sure. I can say...
  4. Update: First Round of Rituxan tomorrow

    Hey y’all! Hope all of my weggies are resting well. Tomorrow is my first infusion. Can’t say I’m too nervous. I’m usually pretty calm. Expecting a non-event.

    Also, I have a question… anyone have...
  5. Re: Hello everyone! Diagnosed with Wegeners in my early 20s

    Hi Ana banana!
    Welcome to the group! I find a lot of comfort in this forum, and even more knowledge. Sounds like the GPA may be smoldering again if the nose bleeds have started back. Hoping that’s...
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    Re: Sinus issues - what to expect?

    Sent from my iPhone using Tapatalk[/QUOTE]

    My GPA started with sinus involvement. There was a lot of sinus pressure like an infection. I woke almost every morning with the remnants of a bloody...
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    Re: Sinus issues - what to expect?

    My symptoms are basically that my ears and nose feel stuffed up all the time and it feels like a lot of effort to swallow. I've had a bit of vertigo and every night I jolt awake several times while...
  8. Re: Y’all settle in and I’ll make this quick… hopefully

    Biggest question to all:
    How careful are we all needing to be while on Rituxin? I am a homemaker and am fortunate in that regard. However with the holidays upcoming we have one or two who would...
  9. Re: Y’all settle in and I’ll make this quick… hopefully

    DRZ, I’ve read many of your posts as well and have learned a great deal. I appreciate it.

    The septum was the beginning of it. It is now at 7cm. My sinuses are basically a train wreck. However, by...
  10. Y’all settle in and I’ll make this quick… hopefully

    Pete, you are correct Medical University of South Carolina. I am here in Columbia, SC. MUSC has been excellent with their care.


    Sent from my iPhone using Tapatalk
  11. Y’all settle in and I’ll make this quick… hopefully

    Newbie…. I don’t know that I have ever felt more like a newbie about anything in my life. Ironically, here I am truly a humbled newbie. Go figure.

    A small bit about myself, a prelude if you will:...
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    Re: A great doctor wants our help

    Hi all, I’m new still. I will do my intro shortly in the correct spot. However, I felt the need to chime in. This idea for Dr. VF is terrific! For myself, I wish I was given a forewarning of the...
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