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Type: Posts; User: NatriceRomeo

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  1. Replies
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    Re: Happy Birthdays Thread

    Happy birthday Anne! Hope you had a great day!
    Natty


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  2. Re: Wegeners/GPA for 41 years - Transplant for 25 - Having a Relapse

    Hi Kim,

    Welcome! Have you had the rituxin infusion? How are you feeling? Weíre there any problems? I find myself that I feel pretty good for a few days (that would be the solumedrol) my body sure...
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    Re: My GPA story

    Hi Rosie,
    Iím sad that you were diagnosed & sick but so very happy you found this forum. I have found the wonderful people here open, honest & full of information. I have had this disease for a long...
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    Re: Lena's story

    Welcome Lena,
    I know I feel quite blessed to find a group of people whom understand. I have to tell you I have had this disease half my life & it never occurred to me to look for a support group! I...
  5. Replies
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    Re: Transplant

    Gliders,
    Congratulations on the graduation of your son! Iím so pleased there is finally some good news for you. I still think of you every day!


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  6. Replies
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    Re: Transplant

    Gliders,
    So relieved things are a little better and you are able to walk further. I am also very relieved that you dad is doing well! Hopefully things will continue to improve.


    Sent from my...
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    Re: Transplant

    Iím sorry gliders! I was hoping and praying that you would be recovered by now & dancing on tables! Iím still thinking of you


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  8. Replies
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    12,112

    Re: Happy Birthdays Thread

    Thank you everyone! You are all so wonderful!
    Natty


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  9. Replies
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    Re: Transplant

    So happy that you have good news finally! Still thinking of you everyday & follow your recovery.
    Natty


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  10. Replies
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    Re: Hi everyone

    Sorento, what a terrible story! Please get a second opinion. I do know WG can affect the heart from what my rheumatologist has said it causes congestive heart failure. I think if the Drs could...
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    Re: Just diagnosed from Queensland Australia

    I was diagnosed in Australia when I was a teenager. It took about 3-4 months. It initially manifested with a swollen eye lid. I went to a GP & they told me o should not be so concerned about my...
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    Re: Hello from another new member

    Hi Tricia,
    Iím sorry you are in the club but happy you found this place. The people are so awesome & everyone here has different symptoms of WG but a life time of experience.
    I do hope you start...
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    Re: Transplant

    Oh no! Iím so sad to hear this. Iím hoping for positive news to come. My thoughts are with you. Please keep us updated. We are all cheering for you!


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    Re: Strict Dieting

    Donít be too hard on yourself. Itís ok to fall off the wagon multiple times. Youíre doing great! Youíre trying & thatís what counts. We are all cheering for you! You got this!


    Sent from my...
  15. Replies
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    26,231

    Re: Transplant

    So glad things are going better. It is a relief you are doing better. Iím still thinking of you!
    Natty


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    Re: Transplant

    Oh no! Please get better soon! Thinking of you!


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  17. Replies
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    Re: Transplant

    Iím thinking & praying for you & your dad. I hope they give you plenty of pain meds! You have been on my mind all day.


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  18. Replies
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    Re: Transplant

    I am thinking of you!!


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  19. Thread: Dry cough

    by NatriceRomeo
    Replies
    16
    Views
    839

    Re: Dry cough

    Hi Alyssa, thank you for your thoughts. I think I am slowly getting better. I did not have blood drawn to see what my ANCA was but yes, the cough and bronch and weight loss were the only things that...
  20. Thread: Leukemia

    by NatriceRomeo
    Replies
    4
    Views
    281

    Re: Leukemia

    I have had melanoma believed to be from immunosuppressants.


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  21. Thread: Dry cough

    by NatriceRomeo
    Replies
    16
    Views
    839

    Re: Dry cough

    Hi Alyssa,
    I can very much commiserate with you! I had a couch for several weeks, my PCP was very frustrated with me & to be honest not nice about it either. I had a rheumatologist app a few weeks...
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    Re: Diagnosed December 2018

    Hi Ken,
    I am sorry you have joined the club but welcome! It sounds like you have a good rheumatologist & hopefully things will get better soon.



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    Re: Transplant

    Thinking of you! Hope all goes well!


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    Re: Happy Birthday to Me

    Happy Birthday! Did you have a fab day??


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    Re: Transplant

    Yay! Congratulations! Best Christmas present ever!!


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