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    Re: Hello from Shawny

    A word about prednisone: People's reactions to it seem to vary widely. Some can't tolerate it, period. Others actually enjoy it, as it gives them more energy for various household projects, etc., and...
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    Re: Hello from Shawny

    Hi, Shawny,
    I just jumped over here from the other thread you started about the situation with your marriage. That is a subject in itself, and I can only say that it's unfortunate that you won't get...
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    Re: Newly diagnosed and Divorcing

    Shawny, you have my sympathy. I see you have started another thread, so I am going to go look there. And welcome to the forum, you have come to the right place!

    Anne

    Sent from my MotoE2(4G-LTE)...
  4. Thread: Transplant

    by annekat
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    Re: Transplant

    Darn it, Pete. I guess we shouldn't get too excited when you have a good trend.
    But you are the important one here, and I'm glad you aren't worrying much yet. Perhaps the tests aren't perfectly...
  5. Thread: Lena's story

    by annekat
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    Re: Lena's story

    vdub, that is interesting. I have arthritis at the base of one thumb, just below the wrist, and can see it starting on the other one. There is what I would call a knot on each. I know this is related...
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    Re: PR3 Antibodies Elevated

    I guess if it was me and I'd been totally off meds for only two months, I'd be a little concerned about a possible flare up. But the things you mentioned, ears and lungs, I would think would be...
  7. Thread: Lena's story

    by annekat
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    Re: Lena's story

    Kirk, somehow I'd thought you had mentioned NAC before. Guess not. I have a lot less mucus since my sinuses have eroded and nothing can collect there anymore. But I still have some, and the problem...
  8. Thread: Lena's story

    by annekat
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    Re: Lena's story

    Hi, Lena,
    It's been bugging me for a few days that I didn't manage to reply to your post. Welcome to the forum! Of course, you have already received a wealth of knowledge and feedback.

    First of...
  9. Re: shankxonline - My path to identify GPA and overcome it

    Yes, 40mg is kind of a lot of pred to be on for two months. Everyone handles it differently, some can't tolerate it and some actually like it! Or the improvement it makes for them, like when I was...
  10. Re: shankxonline - My path to identify GPA and overcome it

    Now looking at your original post, where there was some kidney stuff going on, and here, where you say kidney function was found normal. If there is any doubt about WG being in your kidneys, a biopsy...
  11. Re: shankxonline - My path to identify GPA and overcome it

    The first thing that jumped out at me was regarding your desire to discontinue prednisone when you start one of the standard immunosuppressant meds, that is IF you are found to have GPA or a similar,...
  12. Thread: Transplant

    by annekat
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    Re: Transplant

    It's great to hear you are firmly on the upswing, Pete! After all this time...you have been so patient! And your family, including your dad, of course, must be quite happy about this!

    Sent from my...
  13. Re: Newly diagnosed - ANCA positive, Joints and muscle pains, eye pressure

    Welcome to the forum. You are lucky to live in the SF area. There may be several good GPA doctors in the SF area, but the one I've heard recommended most often is Sharon Chung at UCSF medical center....
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    Re: Happy Birthdays Thread

    Happy Birthday to both of the Petes !!!
    The one in Ohio and the one in England.
    Glad that you are in shape to host a BBQ, gilders . And Pete S., I hope you will celebrate as usual!

    Sent from my...
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    Re: Happy Birthdays Thread

    Thanks, Natty! It wasn't bad, though it was a work day. Did something with my sister the day before, a Sunday.

    Sent from my MotoE2(4G-LTE) using Tapatalk
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    Re: Happy Birthdays Thread

    Well, good memory, but it was a blackberry avatar. I still have it at the top of my Facebook timeline. These aren't just any blackberries, but a kind native to this area which have a lower, trailing...
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    Re: Happy Birthdays Thread

    Thanks, Kirk. It was a pretty normal day, but it's true it is a very nice time of year! When I was a kid my birthday meant school would be starting up soon. Now.... I'm not sure what it means. But...
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    Re: Happy Birthdays Thread

    Thanks, Masha! Actually, my birthday is today, so you aren't late! The blueberry festival was yesterday. I didn't see any actual whole blueberries except those in the pie. But there are lots of them...
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    Re: Happy Birthdays Thread

    Thanks, Pete! That means a lot to me. I hope your health issues are leveling out in a favorable way and things can get back to something like normal for you. Cheers!

    Sent from my MotoE2(4G-LTE)...
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    Re: Happy Birthdays Thread

    Thank you so much, Alysia, for the special birthday wishes! The song and video are so cute, I will try to save them for another person's birthday. My birthday on the west coast starts in about 2.5...
  21. Thread: Transplant

    by annekat
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    Re: Transplant

    That is wonderful news, Pete! I'm looking forward to more excellent results posted in the future.

    Sent from my MotoE2(4G-LTE) using Tapatalk
  22. Thread: Flare?

    by annekat
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    Re: Flare?

    Welcome to the forum! I think it's possible that the blood results will catch up with the symptoms at some point, but it would be nice if you got an adjustment in meds to deal with it before that...
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    Re: Biosimilar for rituximab

    I wonder what the cost will be, compared to that of Rituxin.


    Sent from my MotoE2(4G-LTE) using Tapatalk
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    Re: 17 Year Old Daughter

    Welcome to the Forum, Samantha, and I'm glad you found us. Dirty Don has given you an excellent overview of what to expect when working with Mayo. Please keep us posted on how Madison is doing, ask...
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    Re: Newly Diagnosed

    I think you are smart not to change doses at this point, and your doctor might not like it. I've been at this for 8 years and think I was left on most of my meds for too long. That gave me plenty of...
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