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Type: Posts; User: Ailish

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  1. Thread: Dental work

    by Ailish
    Replies
    2
    Views
    1,638

    Very informative! Thank you! Congrats on your...

    Very informative! Thank you! Congrats on your successful dental adventure and being off of prednisone!!!:thumbsup: I have to begin the process very soon as my back tooth is tilting, so I'm 99% sure...
  2. Thread: Dental work

    by Ailish
    Replies
    2
    Views
    1,638

    Dental work

    Hello everyone!

    I would like to ask for your advice,

    1. I have to get some dental work done in the back of my mouth. I had to extract a tooth in the past and now I need to have either an...
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    Tocilizumab and IL-6

    Hello,
    Has anyone heard about this drug-Tocilizumab? The new study presents another puzzle piece that is involved in pathogenesis of Wegs, an inflammatory cytokine- Interleukin-6....
  4. Replies
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    1,625

    Hello! I'm one of the ones who my docs call...

    Hello! I'm one of the ones who my docs call "loses weight on prednisone". When I mention my meds no one believes that I'm on steroids...(though I did develop osteopenia, skin thinning and cataracts)...
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    3,389

    I most certainly agree, Duffybear...That was my...

    I most certainly agree, Duffybear...That was my first flare in 2013, I expected it to be very similar to what I'd already experienced (starting with scleritis and then ears and sinuses). Thus, all...
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    Hello, I just joined too! I read your story,...

    Hello,
    I just joined too! I read your story, you are a miracle, you've been trough hardships, made it out, made the best of it and still going strong! Such an inspiration:biggrin: We all fight our...
  7. Replies
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    3,474

    Hello and thank you! :rolleyes1: Haha, yes, those...

    Hello and thank you! :rolleyes1: Haha, yes, those balls, even my doctors had no idea what they were (3 little ones under my mid finger and the rest being coughed up). Weg rash looks completely...
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    Sorry to hear you are going through this...And I...

    Sorry to hear you are going through this...And I hope you will get the treatment that will help with the symptoms you are having.

    In the spring of 2013 I had developed what seemed to me a simple...
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    :biggrin1: I too, was aggressive and a terrible...

    :biggrin1: I too, was aggressive and a terrible control freak! I'd schedule almost a whole week ahead and if anything went out of the way I planned I'd suffer horrible anxiety. The lower my...
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    Hello and Thank you! Can't ignore it, right?! I...

    Hello and Thank you! Can't ignore it, right?! I was so mad at my immune system, but one day I was sitting on my yoga mat stretching and staring at my skin, I found a few new moles, and then just...
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    Prednisone and Brain Powers!

    Hello beautiful warriors! :rolleyes1:

    Just wondering how doses of prednisone can affect our cognitive state. When I was first put on it I felt as if it affected me hunger, and sleep mostly, along...
  12. Replies
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    3,474

    Thank you for sharing some of your...

    Thank you for sharing some of your experience!:rolleyes1: I'm glad to hear that you are one of the lucky ones! Congrats!!!:thumbup: I'm sure many get puzzled with all the different aspects of...
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    3,474

    Thank you Terry :rolleyes1: Honestly, I was...

    Thank you Terry :rolleyes1: Honestly, I was resisting the idea that I'd need to go and share this with anyone, I postponed my psychologist for a while, even though I studied psychology myself for a...
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    Hi, I hope your doctor visit made things more...

    Hi, I hope your doctor visit made things more clear for you, as it could be anything. As for sore throat and wegener's, I had this symptom when I got diagnosed back in 2012, it was swollen and red...
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    Thank you so much for your kind words, Jana!...

    Thank you so much for your kind words, Jana! :smile:
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    Thank you, Michelle for the warm welcome...

    Thank you, Michelle for the warm welcome :rolleyes1: The odd part of my attitude toward this whole situation is that when I got diagnosed I was so determined that our initial plans would work out OK...
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    Hello, everyone! Newbie here...

    Hello, my name is Julia, I'm 25 yrs old. I live in Albany NY with my hubby Andrew. I found this website a while ago, but had mixed feelings about accepting my wegs...I still do and do not want to...
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