Search:

Type: Posts; User: loisann11

Page 1 of 3 1 2 3

Search: Search took 0.00 seconds.

  1. Re: Any good wegeners doctors in or near Sun City or Phoenix Arizona?

    I called Mayo in Phoenix and they don't work well with Medicare, told me there would be higher co-pays. I had checked in with one of the satellite clinics last visit and they didn't take it at all. ...
  2. Any good wegeners doctors in or near Sun City or Phoenix Arizona?

    I am moving to Sun City AZ and need to find a good Doc for my Wegeners GPA. Any one know of one??
  3. Replies
    18
    Views
    3,254

    Re: Rituxan maintenance

    Just went to Dr. today and all is good. Labs are all normal. We have decided to wait till labs show a problem or I have signs of a flare. He explains that the CD20 part of my B cells gets wiped...
  4. Re: Rituxin - C19 and C20 and length of B cell suppresion

    Sorry just read this after posting. I was diagnose in 2014 after lungs and kidneys were involved. Did the whole prednisone, plasma exchange and 4 weeks of Rituxin infusion 1 a week. I got off the...
  5. Re: Rituxin - C19 and C20 and length of B cell suppresion

    Just had long talk with my Dr. about that today. He says they don't use those numbers to see where you are at. He goes by ANCA, CRP and sed rate. Just had mine done and all are fine. Been 7 months...
  6. Replies
    18
    Views
    3,254

    Re: Rituxan maintenance

    Thanks so much for info. I had my first infusion in 2014, took the 4 week process. 1 each week. I also had my blood cleaned by that machine, I forget the fancy name for that. Was in hospital for...
  7. Replies
    18
    Views
    3,254

    Re: Rituxan maintenance

    I have been getting Rituxin every 6 months for maintenance since 2014. I have no side effects and take nothing else. I do get a breathing treatment at time of infusion. I have blood tests done...
  8. Thread: RTX and life

    by loisann11
    Replies
    9
    Views
    1,794

    Thanks, high dose prednisone almost did me in, I...

    Thanks, high dose prednisone almost did me in, I had every side effect that was listed and a few extra I think. Not sure how low dose would do but did mention to last doc. Turns out ear infection...
  9. Thread: RTX and life

    by loisann11
    Replies
    9
    Views
    1,794

    My main ones are in the thumb to hand joints,...

    My main ones are in the thumb to hand joints, knees come and go, arches in foot acts up now and then, frozen shoulder, right now neck collar bone. Been told now about gouty arthritis due to higher...
  10. Thread: RTX and life

    by loisann11
    Replies
    9
    Views
    1,794

    Thanks, I have been to the Mayo as a 2nd opinion,...

    Thanks, I have been to the Mayo as a 2nd opinion, but I am about 6 hours away for real care. labs seem to be Ok from what they tell me but each Dr. seems to have a different opinion what all the...
  11. Thread: RTX and life

    by loisann11
    Replies
    9
    Views
    1,794

    Thanks! No prednisone. I'm 66 so aches and pains...

    Thanks! No prednisone. I'm 66 so aches and pains are kinda normal I guess but it's getting so all joints hurt, no ambition, just wondering if normal or for wegs or age. I am getting ear infection...
  12. Thread: RTX and life

    by loisann11
    Replies
    9
    Views
    1,794

    RTX and life

    I have been getting rtx every 6 months since April 2013. So far it does the job of killing my immune system which is what it is suppose to do. No side effects for me from it and it takes about 5...
  13. Replies
    43
    Views
    5,911

    Poll: I have been getting rtx every 6 months since...

    I have been getting rtx every 6 months since April 2013. So far it does the job of killing my immune system which is what it is suppose to do. No side effects for me from it and it takes about 5...
  14. Thread: Rituxan

    by loisann11
    Replies
    24
    Views
    2,261

    Thanks so much for the info. I do have small...

    Thanks so much for the info. I do have small amount of blood in urine, doc says normal for me. My GFR used to be under the 59 so stage 3 kidney disease. But last labs showed up to 72. But I have a...
  15. Thread: Rituxan

    by loisann11
    Replies
    24
    Views
    2,261

    I take no other drugs for this. Haven't since got...

    I take no other drugs for this. Haven't since got off the prednisone almost 2 years ago. I do lab work every 3 months and have a great kidney doc that has others with this. He did great things to...
  16. Thread: Rituxan

    by loisann11
    Replies
    24
    Views
    2,261

    I had pneumonia and was suspected of GPA over...

    I had pneumonia and was suspected of GPA over 2012 Holiday season. I was officially diagnosed and treated Easter of 2013. I had more problems at Easter and went back to hospital now with kidney...
  17. Replies
    5
    Views
    524

    I like to think this is what they call remission....

    I like to think this is what they call remission. I feel good and have no real symptoms. I feel pretty much the way I did before this mess started. Hope it lasts a long time. Good luck!
  18. Replies
    5
    Views
    524

    Did you take any drugs to treat the Wegeners? I...

    Did you take any drugs to treat the Wegeners? I did and now all my ANCA tests are negative. That was the purpose of all the drugs. I also have no B blood cells and normal counts on everything...
  19. I was diagnosed in 2013. I had pneumonia and...

    I was diagnosed in 2013. I had pneumonia and kidney involvement and was first treated with the usual high dose prednisone etc. I did 4 IV doses of the Rituximab in May. It took about 6 hours for each...
  20. Don't cave... if you are getting good care where...

    Don't cave... if you are getting good care where you are. I went to Mayo for second opinion. I saw a Kidney specialist since I have issues there. Personally I found them no better than my Current...
  21. I had good Dr. just couldn't stay in PHX. much...

    I had good Dr. just couldn't stay in PHX. much longer. Needed to get home to MN. They couldn't do biopsy on my lungs since they were in real bad shape. Spitting up a lot of blood at the time with...
  22. This is all fairly new to me. I started with...

    This is all fairly new to me. I started with problems just before Christmas last year. Double pneumonia. Was at Banner in Sun City Az, Dr I had was looking for cause and came up with possible WG. ...
  23. Not sure my last post went to the right place. ...

    Not sure my last post went to the right place. You said you were 20 years WG free, was that without drugs?
  24. when you say WG free is that without drugs? Or...

    when you say WG free is that without drugs? Or were you on something?
  25. Replies
    21
    Views
    3,015

    I had similar problems and went to an ENT. He...

    I had similar problems and went to an ENT. He claimed I had GERD. Said that GERD actually causes more of what looks like sinus issues than real issues. He did give me Prilosec and a Z-Pak since I...
Results 1 to 25 of 51
Page 1 of 3 1 2 3