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  1. Re: Vaccines and the immunosuppressed Webinar. Oct 28th 1500 BST, 1000 ET

    You can find a replay at https://www.youtube.com/watch?v=A6O6kZxqyCg&t=2779s

    It ends after 45 mins (not the 1hr+ the time bar suggests).
    It wasn't as informative as I'd hoped, but still worth a...
  2. Vaccines and the immunosuppressed Webinar. Oct 28th 1500 BST, 1000 ET

    https://covid.joinzoe.com/webinar/vaccines-and-immunosuppressed

    Thought I'd share the above link for those interested. :smile1:
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    Re: Pain in chest wall

    Pleased to hear the pain has almost gone.
    Hopefully it doesn't return!
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    Re: Happy Birthdays Thread

    Kidney is still behaving itself thanks. I've a few issues to do with pain and severe fatigue, but so long as kidney is stable and wegs is under control, I won't grumble. Hope the lung issue isn't too...
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    Re: Happy Birthdays Thread

    Almost a week late, but Happy Birthday annekat
    Hope you're keeping well
  6. Thread: Third Vaccine

    by gilders
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    Re: Third Vaccine

    I'll be taking the third jab when it's available to me.
    I am on strong antirejection drugs (Immunosuppressants) and considering I had no reaction to the first 2 jabs and the fact that I'm at...
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    Re: pberggren memorial thread

    Happy Birthday Phil and Barbara,

    Missed and never forgotten.
  8. Thread: Donations

    by gilders
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    Re: Donations

    Hi Andrew,
    Sent donation usual way via PayPal.
    I don't suppose Stripe does international transfers for free??
  9. Re: Dr. Appt. - Vaccine did not work (no antibodies)

    I've not been on RTX since before my kidney transplant just over 2 years ago, but I am on daily Adoport (Tacrolimus) and Myfortic (Mycophenolate).
    I received my antibody result today and did not...
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    Re: Gave Up on Facebook Groups

    Kidney function can jump around quite a bit, be it a different lab, what you've eaten and most importantly how well hydrated you are.
    Your best route to keeping kidneys healthy is to be well...
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    Re: Gave Up on Facebook Groups

    Hi Larry. Welcome to the forum.
    Glad your kidneys healed somewhat after a year of dialysis.
    I hope your function stays above 20%. I found that once my function dropped to 18% it was a steady and...
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    Re: Suspected Sneaky Kidney Involvement

    Hi Chadwyck.
    I've not visited the forum for a while, so missed your post. How are your kidneys doing now?
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    Re: Suspected Sneaky Kidney Involvement

    Opioid based drugs are generally safe for kidneys, but doctors are now very cautious prescribing them due to misuse and addiction. I use them, but they become ineffective quickly with me, unless I...
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    Re: Happy Birthdays Thread

    Happy Birthday Michelle!
    A few days late as usual :biggrin1:
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    Re: Celebrate how far we have come!

    So sorry to hear you're so sick!
    Fortunately I'm only on a very low dose of prednisone at the moment, but I really struggle with higher doses. When your emotions get the better of you, remind...
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    Re: Kidney Involvement

    Hi shankxonline ,

    I don't think Linda has posted anything in the last 3 years.

    I'd try not to worry about your kidney function too much. A sudden drop is preferable to slow chronic decline over...
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    Re: Coronavirus and GPA

    So good to hear from you, Alysia.
    It's great news that you've had your vaccination and all seems to be getting well organised in Isreal. The figures I've seen show that just over 10% of Isreal's...
  18. Re: New User with no diagnosis. Looking for advice.

    Nasal biopsy is a good idea, but there's been quite a few people who have had false negatives. If your kidneys, or lungs are effected, then the biopsies from these tend to be more reliable.
    I would...
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    Re: Coronavirus and GPA

    Pete just read your earlier post about your fall. Hope you're doing well with pain and the kidneys cysts are just the "getting old" variety and nothing sinister.
    Thanks for update regarding what Dr...
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    Re: Happy Birthdays Thread

    Hi @Alysia,

    It's my birthday today. :smile1:
    It's currently 2.30pm locally.
    Wife made me breakfast in bed and brought my birthday cards and gifts to the bedroom for me to open.
    My mum and dad...
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    Re: Happy Birthdays Thread

    Thank you Alysia and Phil.

    Our town and neighbouring towns are some of the worse in the whole of the UK. We have extra restrictions where you can't even visit anyone even in their garden. Yet pubs...
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    Re: Telling my story

    Happy anniversary!
    Good to hear that medical students are getting to hear it straight from the horse's mouth (hope you have that saying in the US) rather than what Drs "think" how it effects...
  23. Thread: Ear Wax

    by gilders
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    Re: Ear Wax

    Sounds like a good result in the end Pete.
    Hope you're doing well and keeping safe.
  24. Thread: Happy Birthday

    by gilders
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    Re: Happy Birthday

    Happy birthday Anne!!

    If Alysia can't eat the pie, I'll have her slice!:drool:
  25. Re: GPA with right sided pseudo tumour ,leptomeningeal thickening,peripheral neuropat

    Hi Gary and welcome,

    I think the long term, higher-than-usual dose, of Pred could be due to the fact that the Drs had no other ideas of how to control the pseudo tumour?

    Long term steroid use...
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