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  1. Re: I have not been on here in FOREVER

    Hi Tobey, good luck with your Covid-shot!
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    Re: Happy Birthdays Thread

    Congratulations Andrew!
    Very Happy Birthday to you! :biggrin1:
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    Re: some gpa symptoms- ENT advice

    My symptoms also started 11 years ago.
    My kidney function is checked once a year by the immunologist/nephrologist.
    Anca has been negative for several years now...
    No kidney-involvement till today.
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    Re: Pain in chest wall

    I'm ver sorry to hear that you suffered severe pain, and were immobilized, as you describe it.
    I can not tell if this pain is GPA-related.
    All I can tell you is that I sometimes have chestpain...
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    Re: Surviving COVID-19

    Thanks for this well-written and very informative report.
    It's inspiring to read how you organized help in this threatening situation.
  6. Re: Managing symptoms and treatment for a flare

    Hi drz. Haven't seen you writing here for a while.
    I hope your symptoms are 'manageble', and that your heartrate is within the normal range again.
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    Re: Celebrate how far we have come!

    Good to know you didn't run out of insulin, and also that you were able to recharge your iPhone during treatment.
    Also it seems encouraging to me, that your next treatment will only last for four...
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    Re: Celebrate how far we have come!

    Hi drz, many greetings from the Netherlands!
    I hope you'll soon gain strength again.
    A walk in the park to see egrets sounds nice.
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    Re: Reactions to Covid-19 vaccinations

    I 've had my first 'Pfizer-shot' today, and so far no problems but a tiny bit of a sore arm.
    Second shot is scheduled for june.






    Very sorry to read you have to manage a flare right now,...
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    Re: Coronavirus and GPA

    I haven't been vaccinated yet, but I totally agree with your strategy.
    As you already said, the effects of the Covid-vaccinations are not totally predictable for people with compromised...
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    Re: Coronavirus and GPA

    My husband and I are still waiting to be scheduled.
    In our country healthcareworkers are vaccinated first.
    There is still much discussion about the different sorts of vaccins.
    For example: when...
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    Re: Nose Bleeds

    I have had Wegs for 10 about years now. I didn't have nosebleeds as an initial symtom, but I did have little wounds and crusting in my nose-tissue, next to fatigue and heavy jointpain.
    Nowadays, I...
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    Re: Your Thoughts on Dying.

    Wow, drz. Very good that you found and re-posted this thread!
    This is a scaring episode in our life. Who would have thought that we 'd be facing a real pandemic for months and months?
    I remember...
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    Re: Flu shot or not during COVID 19?

    Thanks everybody!
    I phoned my GP, and the assistant told me we will recieve the invitations to get a flu shot soon.

    Will have to wear a mask when going to the medical practice, because Covid 19...
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    Flu shot or not during COVID 19?

    The last couple of years my GP sends me an invitation to come and get a flu shot.
    Untill today, I never did that.

    My question is: how many of you take a shot this year, during the COVID-19...
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    Re: Fowls Cry Foul

    Hi Masha. I read it too. Hilarious indeed :biggrin1::lol:
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    Re: Happy Birthdays Thread

    Happy Birthday Gilders, and many happy returns! :smile1:
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    Re: Celebrate how far we have come!

    That is great news, drz!
    Congratulations also on 10 years, you really came far.
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    Re: Donations

    Hi Andrew. Did you manage to set something up that doesn't need a Paypal account?
    If so, where can I find it?
    Just the number of a bank-account would be great. Online paying is no problem.
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    Re: Haircut

    It is now almost three weeks later then when you wrote this message, Pete.
    I also went to see the hairdresser last week. For the first time since the outbreak of the pandemic.
    Till last week, I...
  21. Re: 41 Years with Wegeners - Not a Relapse after all - Squamous Cell Carcinoma

    Wow! You and your nose look wonderfull. I am so happy for you!
    I can understand that you felt isolated. Very nice that you finally saw your mum, and that your husband is on the way.
    Wishing you a...
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    Re: Happy Birthdays Thread

    Happy birthday Psyborg!
    Haven't seen you for a while on the forum, but I remember your name from earlier posts.
    Hope you are doing good these days.
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    Re: Coronavirus and GPA

    Hi Ed. I haven't heard it so far.

    But I am curious to know if people who read this feel safe with the precautions they take.
    Here in The Netherlands only healthcare-workers wear masks.
    The...
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    Re: Morning Sickness (Not Pregnant)

    I didn't see this thread before.

    Dental sensitivity here also. With my latest flare in february of this year. Treatment with Bactrim eventually made it disappear.
    Morning sickness every now and...
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    Re: Coronavirus and GPA

    https://www.youtube.com/watch?v=I18Q_48ODBQ

    In case you 're looking for a quick instruction...:wink:
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