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    Re: Covid vaccins and WG

    I had my antibodies tested after I had COVID. I contracted the virus literally 5 months after my last infusion and was a month away from the next. I was given the monoclonal antibodies and recovered...
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    Re: Third Vaccine

    I have not had the vaccine but contracted Delta in Augusta and was given the antibody therapy. I caught it right at one month before my Rituxan infusion. I decided to test for antibodies and was...
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    Re: Third Vaccine

    Wow.. before my diagnosis I had some issues with my eyes. My main issue was inflammation of my aorta. I was told the combo of that and wegs was rare, but definitely not as rare as yours. How long was...
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    Re: Third Vaccine

    Were you in remission before the jab?
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    Re: Avacopan

    Wow.. that is extremely disappointing. It is all about the money!
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    Re: Cyclophosphamide (Cytoxan)

    How was your blood work, like your CRP, ANCA, and PR3?
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    Re: Any Weggies in Atlanta?

    Iím in southeast TN.
  8. Re: Tinnitus got significantly worse after 1st Rituxan infusion, thoughts?

    Did you take the vaccine or just from having COVID?
  9. Re: Tinnitus got significantly worse after 1st Rituxan infusion, thoughts?

    Could the brain inflammation be a result of the Rituxan? I know there are conditions that can develop from it, but not sure if that is one. Do they have you on an antibiotic as a prophylaxis?
  10. Re: A great doctor wants our help

    I will say some doctors unwillingness to look into other options than the vax is causing many, not just in wegs world, to lose faith and trust. Knowing our conditions and the ramifications I find it...
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    Re: Third Vaccine

    Good to know... i've been having some tendon/muscle issues after treatment and wasn't sure what it was. They injected 40mg of prednisone and didn't notices these issues till after treatment. Thank...
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    Re: Third Vaccine

    Is this a side effect from one of the treatments? I have had interesting and different types of muscular pains after treatment..
  13. Re: A great doctor wants our help

    Do they want honest opinions? Iíve only been a member for a short time but see many posts of Doctors pressing the vaccination and not looking into alternatives for people with rare and complicated...
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    Re: Third Vaccine

    I got Covid a little over a month ago and had the Regeneron. I think anyone like us on Rituxan would fair better to avoid more vax shots and go with Regeneron until there is more data. Slippery slope...
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    Re: Covid vaccins and WG

    Ask the RA about Regeneron if you get COVID.. It helped me tremendously
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    Re: Third Vaccine

    I'm like you only sharing my experience. But as I was discussing in another post, I decided not to "vax" for a few reasons. I tested positive for COVID a few weeks back and was given the antibody...
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    Re: Surviving COVID-19

    Happy to hear you are doing well now.. First off, I did not get any of the vaccinations for multiple reasons. However, I got COVID a few weeks back and my Rheumatologist told me that if I ever...
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    Re: Third Vaccine

    Look into the antibody treatment, Regeneron. It helped me quite a bit.
  19. Re: Ongoing GPA symptoms with negative labs

    Just getting started in this and just getting past COVID.. I was given Regeneron and have been working through it. Went to RA today for blood work hoping the numbers are still heading in the right...
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    Re: Third Vaccine

    Like I mentioned in another post, I decided not to take the shot. I tested positive on Wednesday of last week and have had an adventure. I will suggest that you talk to you Rheumatologist about the...
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    Re: Coronavirus and GPA

    Unfortunately I tested positive this morning and hope to get through it without too many complications. My rheumatologist is calling in the antibody treatment, but having to wait for availability....
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    Re: Avacopan

    I guess this is why I'm so hesitant about the experimental vaccine. It takes so long for medication such as this to get out and approved, and it was out in less than a year and possibly approved by...
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    Re: Third Vaccine

    I have a few reasons for not taking the vaccine in the first place and one of my fears is the reaction you had to it. I am extremely sensitive to most meds and am one of those that has the rare side...
  24. Re: Managing symptoms and treatment for a flare

    Sorry to hear.. we first realized my reaction to the prednisone before diagnosis when we were treating joint pain. I'd only taken the first round of the prednisone pack and woke around 3am with heart...
  25. Re: Diagnosed August 2020 - New to WG

    Thank you.. Definitely not an easy pill to swallow. I started out at 80mg of prednisone a day and began Rituxan infusions. They had to give me something to calm my heart rate because of the...
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